Search results

Here is why I tried it. Fluge and Mella are now trialing daratumumab, which inhibit something cd38, which apigenin also can do at best. I have tried an awfully lot of supplements though, also more common ones that has helped others but not me, this seems to be my lucky shot.

I was in this thread a long time ago, 4 years I think. I had good effect that time, but that faded away after half a year. 2 years later, ie 2 years ago i tried it again and was good again for some months. I am severe/moderate baseline, but with abilify moderate/mild. Now I have to find a doctor...

As the effect weaned off some months ago, I had trouble stopping Abilify without getting worse sleep. But now it went ok. So after a good pause now, half a year maybe, I can try again. But I wonder, @leokitten you seem to want to try in alternating on and off Abilify, but do you think the same...

I found it at the bottom of the article

Did you do this?

I think Abilify has stopped working for me altogether. I will start phasing it out, from the 0,5mg/day dose I am on, when I have finished try (a bit bigger) dose of oxaloacetate according to Kaufman’s study.

I reread some of what I found out 1,5 years ago regarding this, and Trish is right, this is from a professor in metabolism, and MD, quote “I'm not aware of any enzyme or pathway that produces oxalate from oxaloacetate. Moreover, oxaloacetate is produced readily in our metabolism; it is very...

That is very interesting, thanks for the update! I seem to have the same effect as you on many things. I did try 0,25mg/day, but not for long, and as with you it is the sleep that makes the trouble. I may try again and be a little more persistent that I was. Now I take 0,5-0,6 mg/day, and I am...

I think tweaking the dose could eventually do good. In one direction or another. I do that now. I also have had less effect the last months. I thought that it may have come from vaccine side effects because it started the day after the vaccine, but seven weeks after, it became good again. And...

Couldn’t there be another metabolite, that is a precursor to oxaloacetate, that is cheaper?

I wonder if this will be the last discussion of this in dax18. Henrik Vogt on his Facebook seems to have a lot of things he wants to say, and that this is not the last of it. He was on the speaker list until an hour before the show, but then they canceled him. According to his Facebook, which is...

That’s something to like! Integrity in such boards is not something we have been spoilt with.

I haven’t tried it, but I want to. Abilify helps much for energy and pem, but not for the sore throat/coldness which is also quite debilitating for me. Need to dress very warmly even through summer, and two duvets, blabla. I had a hope that the Covid vaccine would help for that, but no. That’s...

@leokitten Since we have improvement on both KD and Abilify, may I ask if you have tried Plaquenil? And how you eventually responded to it?

The sleep became worse, not having enough hours of sleep at 1,5mg. Enough hours of sleep is very essential to my well-being, so I had to lower the dose. I am now on 0,75mg/day, and I am sleeping enough hours again. And still having the same benefits. @leokitten now you’ve been on Abilify more...

This doesn’t refrain Gundersen from claiming that Fluge and a Ella got 30%. Somehow I doubt the claim. But don’t know for sure

Yeah, and the Ethics Committee has already used quite a lot of time on this, in two subsequent meetings. No chance they have overlooked serious matters in the case. The chance they have of overturning the desicion is practically zero.

I also noticed, especially when HV on the Recovery site half a year ago talked about LL as a “former LP instructor”. They may have been trying to rebrand it as a “ME course”, and maybe try figure out and use the actual psychology used. Don’t know what PP thinks of that, but maybe they have his...

So, when they didnt get this study approved, my guess is that there won’t be a LP study. First, the decision is final from the ethics committee, no appeal can be done. And then, if they try again, they would have to make the study a good one, and take the risks with it maybe to be negative. My...

This come right after Live Landmark, the Ph D candidat and ovner of LP in Norway tweets this and this (I deleted this as it came with tweet from a third person) (I hope it is easy to translate from Norwegian in Twitter, it uses to be that.) Quite convenient that those attitudes got negatively...