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I'm curious to know what it is that he's protecting? He complained that MEA didn't fund research enough when he was booted out but has much improved since he returned? Asking honestly.

I don't know how many of us are on Twitter these days but thought I'd add this to the discussion because it's relevant. A couple of people from within the ME community have tabled a motion to MEA to be discussed at their AGM. My jaw was on the floor reading it. It's a lot to take in but long...

Understand and respect your decision Haveyoutriedyoga. But I encourage each of us who are members to raise it at the AGM. Let MEA know "your silence is deafening". Until concerns are taken seriously & addressed not much will improve. This isn't the only issue with MEA but a symptom. Plus we...

Not surprised. MEA have an AGM coming in December. As a member we can vote on suggestions tabled and raise issues. The way I see it is if they don't want to respond to us then we need to do something about that by attending the AGM and airing our grievances.

Copied from the thread on the PROM funded by MEA https://www.s4me.info/threads/uk-me-association-funds-research-for-a-new-clinical-assessment-toolkit-in-nhs-me-cfs-specialist-services-2023.33221/page-64#post-565801 Not surprised. MEA have an AGM coming in December. As a member we can vote on...