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  1. sneyz
    Post

    Preprint Skeletal muscle properties in long COVID and ME/CFS differ from those induced by bed rest, 2025, Charlton, Wust et al

    Worth noting that this study also finds atrophy in MS patients, and suggests selective type IIa atrophy. The Wüst paper finds no atrophy in patients.
    Post by: sneyz, May 8, 2025 in forum: ME/CFS research
  2. sneyz
    Post

    Two-stage metabolic remodelling in macrophages in response to lipopolysaccharide and interferon-γ stimulation, 2020, Seim et al.

    There was a trial by the Fluge/Mella team in Bergen on TNFa inhibition along with Rituximab. It got terminated, and I haven't come across any...
    Post by: sneyz, May 2, 2025 in forum: Other health news and research
  3. sneyz
    Post

    Open Norway: Study of Daratumumab Injections for Patients with Moderate to Severe Chronic Fatigue Syndrome, 2025

    I think this would only make sense if there’s some form of funding commitment and a complete roadmap from a pharmaceutical co? A Phase II trial...
    Post by: sneyz, Apr 17, 2025 in forum: Recruitment into current ME/CFS research studies
  4. sneyz
    Post

    Autoantibody targeting therapies in post COVID syndrome and myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Wohlrab et al

    Yes! From the paper: «Daratumumab is currently being tested in a clinical pilot open study of moderate to severe ME/CFS in Norway (EudraCT...
    Post by: sneyz, Apr 13, 2025 in forum: ME/CFS research
  5. sneyz
    Post

    News from Scandinavia

    Maybe I read the part you are referring to wrong, but I tought he was referring to that better catering to the needs of patients from the get-go...
    Post by: sneyz, Mar 23, 2025 in forum: Regional news
  6. sneyz
    Post

    Malic acid supplement, sumac

    I’v been trying out different otc supplements to support blood flow by increased NO. I found Citrulline Malate felt superior to other stuff I...
    Post by: sneyz, Feb 20, 2025 in forum: Drug and supplement treatments
  7. sneyz
    Post

    Open ReMEdi clinical trial, UK [Lindus Health, Alfred E. Tiefenbacher GmbH]

    Hmm. Any information on ‘PHOE-01’, or is it just a pseudonym? Looking at a few of the recent publications she’s been involved with Ebselen might...
    Post by: sneyz, Feb 6, 2025 in forum: Recruitment into current ME/CFS research studies
  8. sneyz
    Post

    Placebo effect discussion thread

    Something like this? Jockenhöfer, F., Knust, C., Benson, S., Schedlowski, M. and Dissemond, J. (2020), Influence of placebo effects on quality...
    Post by: sneyz, Jan 28, 2025 in forum: Trial design including bias, placebo effect
  9. sneyz
    Post

    Is it worth getting an air purifier for my constant rhinitis?

    I find controlling air humidity in my bedroom helps a lot. Even going from 60% to below 50% makes a huge difference for me. It should make the...
    Post by: sneyz, Dec 28, 2024 in forum: Other treatments
  10. sneyz
    Post

    Open 2022 Pilot study in Norway - Daratumumab in ME/CFS

    Intuitively makes sense. Can’t find anything conclusive myself. A quicker release could maybe saturate CD 38 receptors faster, and thus allow for...
    Post by: sneyz, Dec 23, 2024 in forum: Recruitment into current ME/CFS research studies
  11. sneyz
    Post

    Open 2022 Pilot study in Norway - Daratumumab in ME/CFS

    From the page for the study at Haukeland University Hospital (Google translate) : «In order for daratumumab to be absorbed by the body, it is...
    Post by: sneyz, Dec 23, 2024 in forum: Recruitment into current ME/CFS research studies
  12. sneyz
    Post

    Opinion Post-exertional malaise – A functional brain aberration?, 2024, Wyller

    Exactly! Always a lot of words about what could be if the stars align, but failing to ask the most central question: What experiments would...
    Post by: sneyz, Aug 22, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  13. sneyz
    Post

    Six-year follow-up of participants in two clinical trials of rituximab or cyclophosphamide in [ME/CFS], 2024, Rekeland, Fluge, Mella et al.

    Just some speculation: It makes sense to publish this broader look at the cohorts first. Publishing data with strong emphasis on responders first...
    Post by: sneyz, Jul 24, 2024 in forum: ME/CFS research
  14. sneyz
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    Just to underline the absurdity.. Pair this with the repeated grip strength testing, and imagine the title: “ME/CFS is associated with better...
    Post by: sneyz, Jun 13, 2024 in forum: ME/CFS research
  15. sneyz
    Post

    BBC: Long Covid course [LP] is ‘exploiting people’, says ex-GB rower, 2024, article and radio program

    Verity&Science1, who describe themselves with: “I am interested in medical and allied approaches which assist people to recover from...
    Post by: sneyz, May 27, 2024 in forum: Long Covid news
  16. sneyz
    Post

    2024: NIH National Institutes of Health - ME/CFS Symposium on Intramural study - 2 May

    Very much agree! I can't get past the fact that they seem unwilling to take in that a lot of patients who are on the milder side of the scale have...
    Post by: sneyz, May 10, 2024 in forum: ME/CFS research news
  17. sneyz
    Post

    A general thread on the PACE trial!

    [MEDIA]
    Post by: sneyz, May 8, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  18. sneyz
    Post

    Sense about Science: Join our talks on science, scepticism and free speech (Garner et al)

    Is this the same Toby Young previously writing for Spiked and standing alongside Living Marxism in heavily underplaying the genocide on Bosnians...
    Post by: sneyz, May 7, 2024 in forum: Other psychosomatic news and research
  19. sneyz
    Post

    Temporal trajectories of COVID-19 symptoms in adults with 22 months follow-up in a prospective cohort study in Norway, 2024, Merete Ellingjord-Dale

    Just to make it clear, from watching the man heading this team debating LC in various news channels: he is well up to date at this point in time....
    Post by: sneyz, May 4, 2024 in forum: Long Covid research
  20. sneyz
    Post

    Use of EEfRT in the NIH study: Deep phenotyping of PI-ME/CFS, 2024, Walitt et al

    All I see is plausible deniability..
    Post by: sneyz, May 1, 2024 in forum: ME/CFS research
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