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I don't count the NYT a reliable source and what they think is promising and not. At the moment, there is no approved drug that could make a big difference. For dexamethasone, a repurposed drug, to be considered a possibility, the FLCCC had to put a lot of emphasis on the matter, which is...

I get headache soon when I try to swim and also surprisingly exhausted. My heart begins to bump very soon. Maybe it's the chloride, I'm not sure. But fresh or cold water makes me freeze immediately, so wild water isn't a choice either. So swimming is a no go for me. I swam a lot during my...

A hopeful guideline update by the NIH recognizing the emerging Ivermectin data.

I mistakenly assumed that the second study referred to an extended sample set and that the first one was on data from 2010 only by how they mentioned "second urine sample" and "first specimens". I'll eventually read these papers and come back with some more information and references...

This is consistent with my own experiences. When a patient has multiple vague symptoms, they get psychological suspicions. In my country, there is also a course or training that is offered to many practitioners. It is called "psychosomatic training". I wonder what they get trained there...

Yes - you keep saying that and we're not always on the same page regarding what is shortcoming (or rubbish) and what has valid information despite its weaknesses. I often see preemptive suggestions in the discussions and undeclared limitations based on implicit assumptions in the study designs...

Pardon me. I meant chronic fatigue, not CFS/ME per se. They provide a differential diagnostic given chronic fatigue. My point was that even if you already have a CFS/ME diagnosis, it doesn't mean that you don't have a co-morbidity like this. It's just a matter of definition if you exclude CFS...

Fascinating how many diagnoses can be associated with CFS. Not like anyone would respect that during diagnosis.

Maybe I should try L-Carnitine again. Have you noticed any difference during PEM? @strategist @Creekside

I'd like to reopen the discussion on this study because it shows more significance than usual CFS studies thanks to their PEM differentiation. As a first note, there might be a measurement bias regarding the measured purine metabolites in the urine. Here are two quotes from their original study...

Just because some criteria exist for the first, this doesn't make it an exclusionary disease. I guess I'll never understand why there isn't a universal approach on fatigue and how to approach all potential co-diagnoses. This is how some people with non-viral liver and kidney diseases might end...

Funny enough, IBS, as to how such related things are often generalized, is also attributed to the psyche by some medical folks. Because it's impossible to consider that the significantly increased amounts of gluten, sugars and hormones could lead to it. Just like it is a coincidence that...

This would be the typical progress of latent and reactivating infections. I think the authors try to clarify that the association doesn't imply causality and that HHVs are necessarily the primary target of treatment. Just because you get HSV during PEM, it doesn't mean that HSV treatment could...

I think it's also a question of stereotype. Hyper-sensitive people are perceived differently, even if they have the same internal mindset and stability as anyone else.

I really wonder if they don't have any other priorities. I mean, I would understand if the lead author was a psychiatrist and needed to publish something. But why are neurologists so fixated on psychosomatism?

There are many types of Diabetes if you include all subclassifications of Diabetes 3. You were probably referring to Diabetes 1 and 2. At least, there is an ongoing movement in the medical community to classify rare and hereditary diseases of the sugar metabolism as well as early-onset...

Does anyone know if DecodeME also has a questionary regarding pre-CFS infection? I really hope that they will try to differentiate subgroups. I can not participate, this is why I'm asking.

Exactly. That they even reduce us to our costs to the health care system. That they even mention this in their motivational argument shows where they are heading and which mindset drives them. They think we are overburdening the system even though we do not deserve the same share of attention as...

Regarding predictors, you first have to differentiate if you want to predict a diagnosis disregarding the imperative and preceding causality or if you want to make the assumption that causality must exist preceding the diagnostic event, and therefore, take into account an initial event. If you...

At least they published it. If neither neuroticism nor trauma (as a subset of stressful life events) can predict their definition of psychosomatism, what else can? When there are no predictors, how can they assume that causality exists? For CFS, predictors exist.