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Reminds me of something..... (Not one mention of ME/CFS in the entire paper by the way.)

https://meassociation.org.uk/2026/05/new-provider-announced-for-kent-and-medway-me-cfs-and-long-covid-service/ MEA reporting that Cora Health, a private equity-backed company that has a number of NHS contracts, has won this award. https://www.nhsforsale.info/private-providers/cora-health/

This is also probably one of the primary reasons why we know so little about ME/CFS.

(opens in new tab) Interleukin 6 as a Treatment Target for Depression Visual Abstract. Importance Interleukin 6 (IL-6), a keystone inflammatory cytokine, is a credible mechanistic candidate for causing depression. However, randomized clinical trials testing its treatment potential remain...

I have researched vision issues a lot because they are some of my most disabling symptoms, although this is largely due to my having visual snow syndrome on top of ME. The optic nerve is just one part of the visual pathway — the other parts are the eyes (the retina, in particular), and...

I'm also a male with PoTS but it's just a well known fact that this is a highly female predominant condition. The figures cited are usually somewhere in the region of 75–85% female predominance, although some studies are higher than that (like this one).

:emoji_warning: Maes Alert :emoji_warning:

Are we to assume that the rest of the paper is not affected by this correction?

Just a minor correction for Bogus Bruce P: https://www.frontiersin.org/journals/immunology/articles/10.3389/fimmu.2026.1832958/full "In the published article, there was an error. In section Materials and Methods, Patients, it was indicated that a total of 144 individuals were enrolled in the...

Actually, that was the other Kell paper posted this moring. That has 439 references.

I noticed the insane amount of references. Douglas and co seem to publish a lot (in any old journal), and I'm not convinced it's of the highest quality.

Has someone got a screenshot of Neil's comment?

Yes, I think parts of Unrest are certainly dramatized. In fact Jen Brea in my opinion does not look like a typical ME/CFS patient. The fits and collapses are not representative of my experience. I suppose we only saw the 'highlights' (or 'lowlights' perhaps). Most of us are much more boring than...

I feel like this could work / be helpful, but only if the HCPs were in that role-play scenario for a whole day or even several days — not just a few minutes like if you wanted to simulate blindness.

This is what I thought at first, but now I think it's probably more along the lines of what @Jonathan Edwards is suggesting.

Well, it would be the actors in (2).

This just isn't clear enough. There's already confusion here. Are they (1) simulating dealing with a patient with severe ME (from the viewpoint of HCPs), or (2) simulating what it is like to be a patient with severe ME from the viewpoint of the patient? I am assuming (1) because (2) doesn't...

There's certainly an issue with patients blindly supporting studies from clinicians and researchers they see as allies (and, conversely, rubbishing all research they don't agree with, e.g., from known BPS types). Luckily there is on this forum a healthy scepticism for any and all research coming...

Here is a link to the 'campaign': https://meassociation.org.uk/campaigns/seeds-of-hope/

My browser blocks embedded X links, so I thought @Amw66's post was the original ME Association tweet. Here is the original tweet (which seems to have been deleted):