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Poster here Article here: https://investors.bioviepharma.com/news/news-details/2026/BioVie-Presents-Data-on-Bezisterim-in-Long-COVID-at-the-2026-American-Neurological-Association-Annual-Meeting/default.aspx

This is standard practise for a conference abstract. All the abstracts are submitted and published in advance, sometimes many, many months before the conference, so sometimes results aren't ready, or they are embargoed, or they simply don't have the space to publish in detail.

It's a good article, and it's also a good example of the uncertainty involved in attributing ME/CFS onset to infections. It's not quite clear in the article, but it seems Beth became ill and only then did retrospective testing, which would, I presume, flag only past infections — covid and EBV in...

I left feedback on the PEM poster based on @Trish's comment about the pushing through and pacing graphs being wrong. Looks like the poster has been updated accordingly, and there are numerous other changes so perhaps others left feedback or they were already revising the poster...

Good spot. This needs correcting.

There's another poster here, on PEM. This is dated (if you find this page through searching the MEA website) October 14, 2026, i.e., today. https://meassociation.org.uk/literature/items/pem-poster/

It certainly seems most prevalent as the '4 P's' or '5 P's' in those circles.

What is going on here? Is this a typo or am I missing something:

I agree. I think the main problem with this infographic is that I can't answer the questions 'who is this for?' and 'why is this useful?'. And I don't think it's particularly well executed — for example the infographic seems colour-coded but in a strange, illogical way, and half the space is...

Ah ok, that makes sense now. Yup, they really don't have a clue about the severe end of the spectrum. Many severe patients will relate to your story.

I am wondering if your doctor thinks prolonged bed-rest or deconditioning from your severe crash might be causing such significant tachycardia on standing...?

I have certainly heard of other patients with this presentation. I haven't got any data to hand about how common this is in LC and ME/CFS but classical OH is less common than PoTS in ME/CFS. But I see no reason why your doctor should be suggesting you don't have ME/CFS based on these results...

As I have written here before, I've read (listened to) this book and it's quite frankly an embarrassment. It could be a few chapters; there's just endless repetition. Very amateurish. Her knowledge of some basic concepts is not there. Lots of cliches about animal brains and fight or flight, etc.

They think it's all the same thing, so they treat it as such. Unexplained fatigue and/or pain with some other stranger symptoms. The Lyme part, or the covid infection part, or the PEM part, is redundant.

I've skim-read it. It seems ok, apart from the NICE guideline stuff. Doesn't really add much to the debate — we know the tests can't be trusted and we know there are expensive, unevidenced treatments. The article is not sceptical of the concept of chronic lyme per se.

LINK "One of the few things [Alastair] Miller could offer was cognitive behavioural therapy (CBT) and graded exercise — which have often been prescribed for patients with ME/CFS, which often presents similar symptoms. However, those options have narrowed. NICE’s latest ME/CFS guidelines advise...

"[SSRIs] have a favorable safety profile and are suitable for long-term use [13]." Sure, Jan!

The audience is always just other academics. Just a few.

It's 100 pages of social-sciences-speak and post-modernist nonsense. No one needs this.

I never experienced the main OI sensations I now get, prior to their onset in 2023. All I can say is it feels different to wanting to be supine and rest during pre-ME viral infections, etc, which is essentially just sickness behaviour. My OI is very distinct, sometimes subtle, sometimes not...