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One of the biggest changes has been Germany and Austria coming on board. I'm not entirely sure what sparked that but it was probably the jump in cases due to covid.

The transcript from my most recent GP appointment, which is viewable on the NHS app, was a complete mess. About half the words were wrong. Not sure if AI or not. The next time I checked the transcript had been corrected.

Dysautonomia is about as neutral a term as you can get. The term specifies *autonomic* nervous system dysfunction, not just that it's connected to the nervous system. The common thread through this pattern of signs and symptoms is altered function of the autonomic nervous system, some of it...

The also allude to lab results that I am not familiar with. Anyone any idea?

https://redcap.deakin.edu.au/surveys/?s=4TC9WCPFXETWHMN7 There are some very suspect claims on here about reversing mito energy issues etc.

What is the claim about pathology? This is just terminology for the sake of the paper. They explicitly say that they are not proposing this term is introduced beyond the scope of the paper. The conflicts of interests are listed at the end of the paper, under Disclosures.

Postural Orthostatic Tachycardia Syndrome (POTS) and Dysautonomia: International Multidisciplinary Expert Consensus Abstract Background Current diagnostic criteria for postural orthostatic tachycardia syndrome (POTS) require history of orthostatic intolerance and heart rate elevation of ≥30...

This is exactly what I suffer with. Much worse in PEM. It's like just looking is an instant trigger — the brain can't cope with processing vision, especially from a screen. And I get the burning eyes too.

What do you mean by this?

Yes, we absolutely need more research on this, in both POTS and ME/CFS. We know some of the key mechanisms likely driving orthostatic intolerance, haemodynamic alterations and compensatory tachycardia, though we need more and better quality evidence. The hard part will be understanding their...

Grammar rules out the window.

This is exactly what POTS is. Let's just focus on POTS. I don't follow this. What is the definable physiologic abnormality in POTS? Are you talking about the tachycardia criteria? If so, I agree that the syndrome should not be centred on this trait. We have had these conversations elsewhere...

You think POTS is a bogus syndrome? Why would POTS be a bogus syndrome but ME/CFS not? Or is ME/CFS a bogus syndrome too? The epidemiological evidence that POTS exists is of the same form as the epidemiological evidence that ME/CFS exists.

The abstract looks pretty reasonable to me. Good to get a review in a top journal.

Probably no peer review either judging by the dates of submission and acceptance in the above screenshot.

I agree... a whole lot of words but not much more. I was going to say that I also don't understand why this is published in Cadiovascular Diabetology, but perhaps this explains why:

She did, but also recovered in around a year. I wonder if it was more of a PVFS thing.

The PEM webinar is now up on YouTube

I wouldn't be surprised if she makes a reasonable recovery and can resume her old career. She seems to have several things in her favour from what I can tell from her videos and posts.

I would not be in favour of tying a name to any one person. It's a recipe for disaster.