[MEDIA] Closing tomorrow (Aus time). Can be completed in around 10 mins, apparently.
It's an estimate based on the numbers in England diagnosed with the ICD-10 code G93.3 (Postviral and related fatigue syndromes), which includes...
I'm not aware of anything of use in Liverpool (worth traveling 300 miles for).
There seems to be some confusion about whether the 404,000 figure is for the UK or just England. I believe it's for the UK, so this article would...
Yes, it's good that they've decided to publically challenge funders on this.
There is the opportunity to support this proposal by signing an open letter hosted by Organise Network, here:...
Additional documents: (i) Letter from ME researchers to funders (ii) Letter to MRC and NIHR leadership (iii) Strategic Research Funding -...
https://psp-me.co.uk/campaign-strategic-approach-mecfs-research/ A new campaign has been launched today by Action for ME, ME Research UK and the...
I don't think a band-aid stimulant is what we need.
The new PIP Daily Living 4-point rule would mean 87% of PIP recipients with standard Daily Living would lose their awards. The figure is 13% for...
[MEDIA] Form here: https://docs.google.com/forms/d/e/1FAIpQLSelDC00Dul6_PiiBEZrAPHgG0HFdp8x9YtpBw9LwFGmIOkhJQ/viewform
I also have visual snow syndrome (7 years of), along with tinnitus (13 years of). Quite clear that my brain has malfunctioned with regards to how...
"This is your chance to make your voice heard! NHS Greater Manchester is designing a brand-new integrated service for people with ME/CFS and Long...
I don't know exactly how it works, but pre-prints are not yet typeset in the journal style, so it is common to upload the submission file and...
That is deliberate. The paper is a pre-print so this will be how the journal expects the manuscript; usually they ask for figures as separate...
One of the co-authors, Natalie Hilliard, is listed as part of Physios for ME, but her first name isn't even spelled correctly, so that's not a...
Did a beta-blocker help you? Propranolol 20 mg in the morning seems to help lower my HR but doesn't seem to do much else to help my OI (which...
Do you have a PoTS diagnosis? Or dysautonomia / OI?
Presumably because there is a signal in the data.
This has come from this group's research on ME/CFS, e.g., https://pmc.ncbi.nlm.nih.gov/articles/PMC8313851/
Separate names with a comma.
