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  1. tuha
    Post

    Endothelial dysfunction in ME/CFS patients, 2023, Sandvik, Mella, Fluge et al

    In my case it was the same. When I got sich I was professional football player. After getting pneumonie (possibly mononucleosis) I have never...
    Post by: tuha, Feb 8, 2023 in forum: ME/CFS research
  2. tuha
    Post

    European ME Coalition:Press release: EU supports research on poorly understood diseases

    Do we know if there are ME organisations preparing a project for this opportunity?
    Post by: tuha, Dec 13, 2022 in forum: General ME/CFS news
  3. tuha
    Post

    The Occurrence of Hyperactivated Platelets and Fibrinaloid Microclots in ME/CFS, 2022, Nunes, Pretorius et al

    Will he try to check her work or the methods being used? Did he say what he thinks about?
    Post by: tuha, Jun 28, 2022 in forum: ME/CFS research
  4. tuha
    Post

    Neurovascular Dysregulation and Acute Exercise Intolerance in ME/CFS: A Randomized, Placebo-Controlled Trial of Pyridostigmine, 2022, Systrom et al

    In my case I have always muscle weakness and lactate accumulation. If I push myself I still have muscle weakness, then very big lactate...
    Post by: tuha, May 6, 2022 in forum: ME/CFS research
  5. tuha
    Post

    (2022) "Weʼre raising £16,000 to Continue Dr Geraghty's Vital ME/CFS Research"

    I really like these crowdfunding campaigns. I think we could use it more to get some money to our researchers and advocates.
    Post by: tuha, Mar 30, 2022 in forum: Fundraising
  6. tuha
    Post

    Genetic association study in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) identifies several potential risk loci, 2022,Hajdarevic et al

    Are these findings similar to multiple sclerosis?
    Post by: tuha, Mar 22, 2022 in forum: ME/CFS research
  7. tuha
    Post

    United Kingdom: Action for ME (AfME) news

    I ask myself why ME/CFS researchers didnt do such a study already long time ago when there is a solid chance that it show us right direction. I...
    Post by: tuha, Mar 19, 2022 in forum: News from organisations
  8. tuha
    Post

    Persistent Exertional Intolerance after COVID-19: Insights from Invasive Cardiopulmonary Exercise Testing, 2021, Singh, Systrom et al

    Merged thread The study found out that LC patients have inability to extract oxygen in the peripheral tissues, for example, the muscles A normal...
    Post by: tuha, Feb 22, 2022 in forum: Long Covid research
  9. tuha
    Post

    The microclots in ME/CFS study has begun

    I dont know if another team will try to replicate this study in ME/CFS patients but there was a japaness team which I think replicated it in covid...
    Post by: tuha, Jan 19, 2022 in forum: ME/CFS research news
  10. tuha
    Post

    Chronic Fatigue Syndrome and Cardiovascular Disease: JACC State-of-the-Art Review, 2021, Natelson et al

    Ok, now I understand what you mean. I dont do high intensity because then I dont feel good. But maybe what is interesting and I think it´s...
    Post by: tuha, Dec 27, 2021 in forum: ME/CFS research
  11. tuha
    Post

    A map of metabolic phenotypes in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2021, Fluge, Mella et al

    Well, i just speculate, i dont have any scientific background. Some weeks ago i read a paper that 90 % of metabolic dysfunctions are treatable....
    Post by: tuha, Dec 5, 2021 in forum: ME/CFS research
  12. tuha
    Post

    A map of metabolic phenotypes in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2021, Fluge, Mella et al

    Many studies including this from Fluge/Mela suggest metabolic disfunctions in ME/CFS. Is it not time to check the exact metabolic profil of some...
    Post by: tuha, Dec 4, 2021 in forum: ME/CFS research
  13. tuha
    Post

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    I lead slovak ME/CFS group and i also follow some slovak long covid groups. To my knowledge there is already one clinic for long haulers in Nove...
    Post by: tuha, Nov 18, 2021 in forum: Regional news
  14. tuha
    Post

    A map of metabolic phenotypes in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2021, Fluge, Mella et al

    How far are we from proving this hypothes?
    Post by: tuha, Sep 9, 2021 in forum: ME/CFS research
  15. tuha
    Post

    Covid-19 vaccination experiences

    i got my first vaccine - Pfizer 2 weeks ago. At first i felt ok but after 1 weak i started to feel weak, kind of heart weakness and i feel big...
    Post by: tuha, Sep 7, 2021 in forum: Epidemics (including Covid-19, not Long Covid)
  16. tuha
    Post

    Chronic Fatigue Syndrome and Cardiovascular Disease: JACC State-of-the-Art Review, 2021, Natelson et al

    What about to check the patients like me. I work part time, i pace a lot, i do 7000 steps a day so i cannot be deconditioned. Still many heart...
    Post by: tuha, Sep 5, 2021 in forum: ME/CFS research
  17. tuha
    Post

    Chronic Fatigue Syndrome and Cardiovascular Disease: JACC State-of-the-Art Review, 2021, Natelson et al

    I think we should stop to talk about the role of deconditioning. It's certainly a small issue especially in severe cases but not the main problem....
    Post by: tuha, Sep 4, 2021 in forum: ME/CFS research
  18. tuha
    Post

    A map of metabolic phenotypes in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2021, Fluge, Mella et al

    I really like this hypothes. How difficult it is to prove that there is that problem with tissue hypoxia and endothel dysfunction?
    Post by: tuha, Aug 26, 2021 in forum: ME/CFS research
  19. tuha
    Post

    Breathlessness and air hunger in ME/CFS

    I ask if this "air hunger" or "breathlessness" or what it is - if it´s not because of muscle weakness, accumulation of lactic acid in muscles or...
    Post by: tuha, Aug 3, 2021 in forum: Cardiovascular and exercise physiology (CPET)
  20. tuha
    Post

    2021 Pan-Europe ME Patient Survey (EMEA)

    will we see the numbers from all countries or just from the best ones? I am from Slovakia and I would like to see our numbers. At least it was me...
    Post by: tuha, Jul 7, 2021 in forum: Advocacy Projects and Campaigns
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