or I dont know where @paulendat is doing his research but maybe you can use a ME/CFS biobank or to cooperate with a ME/CFS doctor. How I already...
@paulendat @Sasha we have those CCC, ICC and other diagnostic criteria but no doctors use it. if you get ME/CFS diagnosis it´s mostly after...
There are 2 facebook groups which I know: ME/CFS Slovensko - myalgická encefalomyelitída / chronický únavový syndróm (950 members)...
Hi @paulendat Happy to see someone from my country who is interested in ME/CFS field. I lead ME/CFS facebook group where is around 1000 slovak...
@dundrum Also some years ago after many analysis of PACE trial from experts and ME/CFS organisations and many complains there was an independent...
@dundrum No, there is no aversion to psychology. I lead a group of about 1000 ME/CFS patients in my country and many of them visite...
@Mij @jnmaciuch but is it not bizarre that we get PEM with activities where you are less tired after but you use more your muscles? Why is it...
I dont know if it´s interesting but I found this observation. I can do 6000 steps a day and I get only occasionally PEM. My muscles are weak so...
The problem in Czech republic is that some prominent doctors with big influence are psychosomatic proponents of ME/CFS. They are very arogant and...
Some years ago I did a crowdfunding campaign for OMF for their ME/CFS severly ill big data study. I think Sasha helped me with the text that time....
How I said before we already did some crowdfunding campaigns and there are many ME/CFS patients who have money and they can donate. Many patients...
if so many people here think that Chris Ponting is a good candidate who could significantly move ME/CFS field why not to do a crowdfunding...
I think the diseases which you mentioned are mostly not chronic. Do you think that it´s also possible in chronic diseases or how you call it...
you are right, I mix it because in my language it´s different :-)
Is it possible that the same cause can lead to different diseases and it depends on for example which system the cause hits in our body but also...
If I understand correctly the saliva samples donated to DecodeME will be used for SequenceME study. How much time does it take sequencing of...
I dont know if this will be usefull but from my 25 years observation (I have mild ME/CFS and I am ex profesional sportman): 1. the muscle weakness...
For me the biggest question regarding to our muscles is - we have strength but very bad stamina. I think this question has never been answered. I...
Now when I read this thread I would say that it´s another kind of malaise, it´s different to feel poisoned but it´s also different to an ordinary...
I also used the term feeling poisoned the next day after drinking a bit more alcohol but I am not sure if it´s accurate. In my case it´s...
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