Search results

I've tried it twice. Through the Scottish pharmacy that does the private consultation option. Both times I had issues with viral reactivation. But it becomes so intense I can't sleep and go backwards. Pretty confident it's ebv every time. Very few doctors seem to understand how to treat chronic...

I forgot to add that when I started merformin for my LC and specifically my painful hands (no diagnosis yet) I experience a viral herx aches pains fatigue and malaise that evening and overnight but felt better and had way more energy + physically less weak the day after. I took Metformin for a...

For what it's worth I tried this with my third infection. I got long covid from my second infection. My long COVID wasn't fully resolved by the time I got my third infection. I was probably 60 to 70% my pre COVID level. I got boosted and got novavax for the first time and for the first time in...

I'm now convinced after that post above that Dr T is under NDA as well and so can't say much at all. I was quite surprised by the post though wasn't expecting it. I've noticed that they don't post on mastodon anymore and seem to use twitter more overall. I saw another post by Dr T where she...

@Mij funny you mention pylori, after reading Missing Microbes which is an excellent book, I am thinking I may have that issue right now. Problem is antibiotics make me feel truly terrible so not sure if it would help me or not. Last major round I had has given me a lot of the worsened sympoms...

The other thing about these antibiotics is that taken for a long period (argument here as to what that is, the last consultant doctor I spoke to suggested it was over 12 to 14 days) and in the book Missing Microbes studies back up what I am about to say. Low doses or short doses reduce...

Hahaha oh man. This doesn't suprise me because Dr t and her exchanges with Tess seemed few and far between. I guess what I want to say is I saw it coming but you can never be certain. Nice to be validated. That woman attacked me twice totally unprovoked on social media. So am glad she's been...

Not just that but loads of us could have chronic asot or pneumoniae or another type of bac infection. If someone is taking a potent antibiotic with some broad spectrum action is it any surprise they felt considerably better. Also what about Lyme disease - tbh the bacteria are probably very...

I can't see this one posted above so adding it: https://gut.bmj.com/content/71/3/544 "Gut microbiota dynamics in a prospective cohort of patients with post-acute COVID-19 syndrome" It stood out to be because it replicates the pattern seen in a lot of the other studies in this thread...

IP had the same effect on me, not sure why but my own theory is that the ebv infection has gone latent in a much wider variety of tissues and organs than was originally the case in the first 4 years of my illness. But I also relapsed after taking it, I am not sure how long the recovery time...

https://pubmed.ncbi.nlm.nih.gov/19112401/ from 2008 also "Background: There is now evidence that an increased translocation of LPS from gram negative bacteria with subsequent gut-derived inflammation, i.e. induction of systemic inflammation and oxidative & nitrosative stress (IO&NS), is a new...

Tbh this could backfire badly on them. Get enough people unethically sourced and you might well get a lawsuit. Also they talk about patients become true advocates and essentially building a group of people to push the protocol that way too. Which I didn't like the language use of. It felt very...

Patient blaming has sadly become part of the underlying conversation from RB. However it's only coming from Tamara not Tess. Which says a lot. It's not right to blame patients for a disease they did not ask for and where there often neglected by the medical community. But primarily governments...

Viral onset for me but 2 weeks after I had recovered not straight away. Then near remission 2 years later but set back after general anesthetic and never returned to baseline. Acute ebv reactivation 2020 definitely set me back yet again. Currently on famvir and have experienced quite a big ebv...

It's been about 14 days now since my moderna half dose and I am back at about 50% function so really pleased. Side effects were pretty mild in all honesty, must have been 3 days of virally type symptoms. Certainly haven't been any long term effects which is good and heart has returned to...

Those doses are lower than the thorne multis. Bit daft really, might as well just take them. Also carninite and arginine have always made me angry, terrible chest pain, very anxious, etc. I'd be surprised if some people in the ME group didn't respond similarly. And if that's a decent amount...

Day 5 Moderna now. Starting to get relapse of ME symptoms, dizziness with fatigue. It's not a severe relapse of symptoms though, not yet anyway. But incredibly dizzy. Also food seems to be bubbling away in my stomach or causing nausea and me to feel really rather sick. Slept for an hour on...

@Wits_End well I had pain in my upper chest after moving stuff. It felt very much like exertion drove the pain as opposed to over use or something like that. First day after the jab it was more like chest tightness and having to breath in a lot. I take an inhaler twice a day but my asthma is...

I'm on Day 3 now, lots more energy today. Evening on Day 2 I had a full on viral attack of pain all over my whole body for about 3 or 4 hours - that was pretty nasty while it lasted. Today feel really good, but I did start getting chest pain after moving some stuff into the living room. I do...

Well so far the side effects haven't been too bad. I was having to take in big lungfuls of air in the evening and my chest felt tight - assume that's a heart issue. But it's gone today. Other than that a very sore arm and very hyper. 20 minutes after my jab I started feeling very full of...