Search results

@Snowdrop All good, and glad you're encouraged by the advocacy work here -- I very much share the sentiment. Completely agree. Just made me think to share a couple of pages at the Danish ME Association website that I find really useful, given that a lot of their work is quite transparent...

I agree with you in principle although knowing the amount of work Cathrine is doing both representing patients in the media and advocating on our behalf behind the scenes with politicians, authorities and clinicians, I don't think the criticism applies to her -- e.g. she, along with others at...

By no means annoying. I can see your point but for this particular article, the last section of quotes from Fink, Engsig and others was pieced together from different previous articles by the same outlet. So it ends up appearing as more of a 'conversation' than is in fact the case. I'm guessing...

An update, the op-ed from Mehlsen/La Cour from the other day is no longer paywalled. Happy reading/G translating, same link: https://www.kristeligt-dagblad.dk/debat/psykolog-og-forsker-sundhedsstyrelsen-svigter-personer-med-kronisk-traethedssyndrom ETA: Also, I just learned this change was due...

Indeed, that page is replete with misleading and false information and astonishing that no effort has been made to correct this in the wake of parliamentary pressure. But no wonder clinical practice is not improving when this is what doctors are led to believe. Bodily distress syndrome (to be...

Another op-ed from Danish ME clinician and researcher, Dr Jesper Mehlsen, and psychologist, Peter La Cour (also at Mehlsen's clinic), published Feb 10 in the Kristeligt Dagblad daily newspaper...

Indeed, pandemic news would have diverted some press attention from studies like this, for better or worse. I suppose to the degree Fluge et al's model might actually hold together as future clinical studies and research (by either themselves or others) seek to test its different components, the...

Thanks so much @Kalliope for sharing this and for the extensive summary. Indeed pretty advanced and hard to follow but easier with Fluge's slides and your notes. I always appreciate the chance to listen to some Norwegian as well, it's like Danish but nice :emoji_upside_down:

Thanks for the solidarity :emoji_four_leaf_clover: I guess it isn't really going great anywhere... But yeah, especially seeing the parliamentary motion leading to so little was disappointing -- not sure to what degree that's gonna go much further. Have to say tho, the Danish ME Association are...

Great to see this shared and supported in here! Just to give a bit of context, this petition actually predates the document which came out just the other day from the Danish Health Authority and amounts to a kind of position statement, largely rejecting the updated NICE guidelines. That...

A new op-ed by ME patient Madelleine Müller appeared today in the Danish daily newspaper, Information. Fortunately, it is not paywalled and accessible freely here: https://www.information.dk/debat/2021/09/me-patient-baade-udholde-lidelsen-ved-sygdommen-mistaenkeliggoeres-laegestanden (for...

I would, but afraid it would violate copyright and forum rules to post the full text, sorry... The link above does grant free access, although with the hassle of having to create an account. It's a troubling idea indeed. In this particular case, I think it can be put down to the Minister simply...

A much anticipated op-ed by some of the leading ME clinicians and researchers in Denmark has been published in the Politiken daily newspaper: https://politiken.dk/debat/kroniken/art8203824/S%C3%A5dan-kan-vi-blive-klogere-om-senf%C3%B8lger-af-covid-19?shareToken=44seCYAAfMHg It's paywalled but...

Thank you! Fingers crossed indeed, it's uphill but luckily some people here are doing incredible work to help things along, especially at the ME Association. And there's a few key allies among politicians and health professionals so all forces combined there's reason to believe :)

Hi all, Danish newcomer to the forum here, just came across this thread -- happy to meet everyone, and very good to see you're all following events here! Just to fill a few gaps in putting you up to speed on the latest. This is just writing off the top of my head so I won't be able to cover...