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  1. soti

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    As you well know, these publications don't exist. I do understand your concerns, and to some extent I share them, but the point I am making is that your concerns do not fall under the rubric of open science. "Open science" emphatically doesn't mean you need to share your ongoing clinical and/or...
  2. soti

    Call to Action: Westminster Hall (UK) (parliamentary) debate: PACE trial and its effect on people with ME - Carol Monaghan February 20

    I've had multiple doctors in France cite CBT and GET as the only appropriate treatments (well, along with antidepressants!) and attempt to shame me for not agreeing with them.
  3. soti

    Coat hanger pain - any suggestions for relief please?

    Oh I'm sorry you're in so much pain. I feel like I spent years treating my coat hanger pain as muscle pain and it never worked. Sometimes made it worse. The only thing that helps me a little is one of the isometric exercises in the isometric video that was posted on here a while back for a...
  4. soti

    ADHD Drugs for Chronic Fatigue Syndrome - How Well Do They Work?

    I echo the words of caution but I would also like to throw something in here. Stimulants are sometimes prescribed (off-label) to treat POTS brain fog. Many pwme have POTS. In my own experience, methylphenidate is great for that. It does nothing for my wooziness, nor for my PEM, but getting...
  5. soti

    Co-creating recovery in CFS/ME: A reflexive exploration of a Rebuilding your Life programme

    This is an entirely inappropriate comment. It insinuates that girlieness is shameful and insulting, and furthermore associates it with non-seriousness and bad methodology. Neither of these insinuations has any basis in reality. Many scientists are girlie. Yes, it's possible to be girlie AND to...
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