The second visit was 7-10 days.
Sanna is one of the patients who is in remission or recovered. Edit: She phrases it that she is doing much better but I actually don't know if...
See my response just above...I believe several patients opted out of the CPET. I would not have enjoyed being asked to do a second one. I think...
Someone asked for my response...and my current response is that I'm not interested in providing a full response...I have a lot of thoughts on the...
The paper will be published in Nature Communications Feb. 21. It's getting some attention from reporters thanks to some work from @Dakota15.
Yes, intramural study tried to study PEM after CPET. IIRC, we had blood drawn before, during, 1 hour, 3 hours, 12 hours and 24 hours after the...
The study did extensive pathogen screening, including in spinal fluid. But an antigen can be any piece of a pathogen or even a non-pathogen.
Nature Communications is a good journal. Publishing there doesn't mean they found nothing...what a weird comment. Edit: It is open access and...
Paul Hwang says he's been "deluged" with emails from patients and he's trying to respond to each one with a prepared response. So I'm guessing...
Just noting here that the Independent (UK) picked up the story (they just rewrote mine, haha). So it's getting some attention in the UK too, which...
1) I don't think it's possible outside of a research setting. 2) So the numbers are a little tricky. The main measure of WASF3 was really between...
Absolutely
Paul Hwang is trying to get a clinical trial of Relyvrio going. It's an ALS drug and he has some evidence it can reduce overexpressed WASF3.
Yes, here is a gift link: https://wapo.st/3Pem0G4
My article about Amanda Twinam, the woman whose doggedness in understanding her own health problems led to Paul Hwang's work, is finally out. Also...
Oh yes, it is slated to run after Labor Day now ..so should be next week. I should have learned not to anticipate publication dates by now, haha.
Genes are often named for the first thing they're associated with. In this case, the gene was first identified in this syndrome so it's stuck with...
Yes, he's looking at Relyzrio, approved as an ALS drug a few years ago. Edit: He was also looking at TUDCA + another supplement but it sounded...
Did you check the supplemental materials for some of the info you're looking for? You could also write Paul Hwang and ask for it.
I haven't kept up with the federal open access policy but it used to state that NIH funded work had to be made public access within a year of...
Separate names with a comma.
