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    Well-known, famous people with ME/CFS (public thread)

    I saw that yesterday. I watched the whole video, because I thought it was interesting on many different levels. His reach on the Internet is massive. Not only because of his audience, but also because of his relationships to other podcasters with huge audiences. First of all, I really hope he...
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    News from Germany

    I assume he is well-intended, but very confused. But his confusion is not the fault of patients. And talk about hubris: „That frustrates me not only personally but is also a symptom of a much bigger problem. If a doctor who really wants to know cannot understand, something is fundamentally...
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    Reverse-transcribed SARS-CoV-2 RNA can integrate into the genome of cultured human cells '...' expressed in patient-derived tissues, 2021, Zhang et al

    I am not sure if it fits here and I can't judge the quality of the study and the speculation regarding long covid and maybe ME/CFS. I hope it was not posted already. I am regularly listening to a podcast with the German epidemiologist and virologist Alexander Kekule, who is my guide through...
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    Reverse-transcribed SARS-CoV-2 RNA can integrate into the genome of cultured human cells '...' expressed in patient-derived tissues, 2021, Zhang et al

    Abstract Prolonged detection of severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) RNA and recurrence of PCR-positive tests have been widely reported in patients after recovery from COVID-19, but some of these patients do not appear to shed infectious virus. We investigated the...
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    David Tuller crowdfund: Trial By Error: Reporting on ME/CFS and Related Controversies

    I am also a bit saddened to see this and wonder why this is the case. I think that David writing in English is only part of the problem (I had contact with a patient who grew up in East Germany before the wall came down, and like many others, she didn't have the oppurtunity to learn English...
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    What does your crash feel like?

    Hi! As I wrote in my introduction, I am sometimes not quite sure, if my ME/CFS diagnosis is correct or not. But I certainly have some kind of PEM and it might be interesting to hear from someone who is mildly affected. I have to differentiate between three kinds of physical activity. The first...
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