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I'm still digesting all the info and research between dysautonomia, Sjogren syndrome and MCAS. All your input has been very useful, but unfortunately most of the advanced testing isn't done in my country. I've seen my GP today, and i think he has read the letter i wrote him last time because...

Thank you for all your replies and suggestions. :) I will need a few days to digest all the information and create a document for my neurologist.

Wow, that's an impressive list of tests to diagnose your autonomic dysfunction! I guess you are from the US? In my country I doubt they even do a quarter of the tests you mentioned.

Same here! Cipro was the trigger for my ME and dysautonomia. That poison has destroyed my life.

I will soon see a neurologist with knowledge of dysautonomia. A tilt table test will be performed but i find that a bit shortcoming for a proper diagnosis because there are several subtypes and causes for this disease. What is the absolute golden standard to diagnose the type of dysautonomia...

@Trish , thank you. @Gingergrrl , nice to see you here. Yup, your story is a prime example of the damage that these fluoroquinolones can achieve.

Same here. I was having some bowel problems and a few allergies and intollerances. I then was prescribed cipro for a misdiagnosed bowel infection and that triggered my ME. It made me sick as a dog and i wanted to stop using it but the physician kept pushing me i had to finish the course or she...