clinical service

  1. Dolphin

    Health outcomes of patients in the Complex Chronic Diseases Program, 2025, Meagher, Nacul, et al.

    Now published, see post #4 ------------------------------------ Free: https://www.medrxiv.org/content/10.1101/2024.05.25.24307912v1 Complex Chronic Diseases Program: Program Description & Health Outcomes Assessment from a Clinical Data Registry Emily Meagher, Tianna Magel, Travis Boulter...
  2. Dolphin

    Healthcare experiences of young people with CFS/ME in their own words, 2025, Watson & Segal

    https://adc.bmj.com/content/110/Suppl_1/A152 Young People’s Health Special Interest Group 7799 Healthcare experiences of young people with CFS/ME in their own words Hector Watson1, Terry Segal2 University Hospitals of Derby and Burton NHS Foundation Trust University College London Hospitals...
  3. SNT Gatchaman

    Trajectories of functional limitations, health-related quality of life and societal costs in individuals with long COVID, 2024, Wang+

    Trajectories of functional limitations, health-related quality of life and societal costs in individuals with long COVID: a population-based longitudinal cohort study Jiunn Wang; Henry Goodfellow; Sarah Walker; Ann Blandford; Paul Pfeffer; John R Hurst; David Sunkersing; Katherine Bradbury...
  4. Nightsong

    A quest to manage CYP with ME/CFS and [LC] under one MDT service – evaluation of a regional centre for CYP ME/CFS and [LC] services, Anbu et al, 2024

    A quest to manage CYP with ME/CFS and long covid under one MDT service – evaluation of a regional centre for CYP ME/CFS and long covid services Abstract Objectives Long Covid (LC) is a debilitating condition seen both in adults and CYP since COVID-19 pandemic.1 The similarities between LC and...
  5. Andy

    Working knowledge, uncertainty and ontological politics: An ethnography of UK long covid clinics, 2024, Greenhalgh et al

    Abstract Long covid (persistent COVID-19) is a new disease with contested aetiology and variable prognosis. We report a 2-year ethnography of UK long covid clinics. Using a preformative lens, we show that multidisciplinary teams (MDTs) built working knowledge based on shared practices, mutual...
  6. Kitty

    Annual reviews for ME/CFS

    First posts copied and others moved from UK:ME Association funds research for a new clinical assessment toolkit in NHS ME/CFS specialist services, 2023 ******** Most people with a 'proper' chronic illness have an annual review, don't they? I have them for two different conditions, neither of...
  7. Kalliope

    Trial Report The most severely ill patients with ME/CFS in Denmark, 2024, la cour

    Moderation note: Abstract and link to the English version are in this later post - link ****** Yesterday the Danish Clinic Mehlsen by professor and psychologist Peter la Cour, PhD and Susanne la Cour, GP published a report based on home visits and interviews with 19 severe ME patients and...
  8. SNT Gatchaman

    Larry Weed's 1971 Internal Medicine Grand Rounds - and quality management in health care generally

    Post copied from here I don't think this has been posted already. It's 1 hour long, in black and white and from 1971. However, I think many here will appreciate the ahead-of-its-time discussion about medicine, its failings and how it could and should be done properly. I expect @Jonathan...
  9. rvallee

    2022 Australia: New South Wales (NSW) Clinical Practice Guide for ... adults with post-acute sequelae of Covid-19 (PASC, Long Covid)

    Clinical practice guide for assessment and management of adults withpost-acute sequelae of COVID-19 Guidance for NSW health clinicians https://aci.health.nsw.gov.au/__data/assets/pdf_file/0011/726878/ACI-CPG-for-assessment-and-management-of-adults-with-post-acute-sequelae-of-COVID-19.pdf...
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