I thought it would be helpful to post a link to the DePaul University web page with their symptom questionnaires:
https://csh.depaul.edu/about/centers-and-institutes/ccr/myalgic-encephalomyelitis-cfs/Pages/measures.aspx
Copy of Facebook post by Leonard Jason:
From the DePaul Group:
Are you 18 or older? Do you experience Post-Exertional Malaise? Or are you a member of the general population interested in contributing to research?
We are conducting a brief online survey as part of a research study focused on...
The Implications and Predictability of Sleep Reversal for People with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: A Machine Learning Approach
Meghan P. Dietrich, Raam Pravin, Jacob Furst, Leonard A. Jason
Background/Objectives:
Impaired sleep is one of the core symptoms of myalgic...
The most popular questionnaire for PEM is the De-Paul Symptom Questionnaire, which, to be frank, is not the best, as it mostly focuses on fatigue after exertion and seems to flag an unlikely proportion of people with other illnesses having PEM.
It seems there isn’t much competition. The FUNCAP...
Effects of a symptom-titrated exercise program on fatigue and quality of life in people with post-COVID condition – a randomized controlled trial
Barz, Andreas; Berger, Joshua; Speicher, Marco; Morsch, Arne; Wanjek, Markus; Rissland, Jürgen; Jäger, Johannes
Fatigue is the most prevalent symptom...
Objective
Post-exertional malaise (PEM) is a common and debilitating symptom of post-acute COVID-19 syndrome (PACS), and it is also included in the core outcome set for PACS. Our aims are to determine the prevalence of PEM in patients with PACS, and to review the measurement tools utilized in...
Abstract
Background
Individuals may experience a range of symptoms after the clearance of the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2) infection. This condition is termed long COVID (LC) or Post-COVID-19 condition (PCC). Despite the appreciable number of symptoms documented...
Hi All,
It's be really interested in what people's thoughts are for the most accurate fatigue scales that can be used in research studies?
Ones that also give representation to PEM over time.
The CFQ (chalder fatigue scale/ questionnaire) is often used but has serious limitations.
The DePaul...
From: Dr. Marc-Alexander Fluks
B.Sc. Thesis Kate Donnelly
Source: University of Tasmania Date: December 2019, online September 2020 URL: https://eprints.utas.edu.au/35168/
https://eprints.utas.edu.au/35168/1/Donnelly_whole_thesis.pdf
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