epilepsy

  1. T

    Support Experiences of Children and Youth with ME/CFS and Epilepsy in New Zealand Schools: A Parental Perspective, 2022, Bierre (thesis)

    Support Experiences of Children and Youth with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Epilepsy in New Zealand Schools: A Parental Perspective A thesis presented in partial fulfilment of the requirements for the degree of Master of Science with an Endorsement in Health...
    • Tom Kindlon
    • Thread
    • children education epilepsy me/cfs new zealand school young people
    • Replies: 2
    • Forum: ME/CFS research
  2. Sly Saint

    RADAR-CNS: Researching the potential of wearables and smartphones to monitor and manage epilepsy

    interesting video on youtube: any reason this tech couldn't be used to monitor 'non-epileptic seizures/dissociative seizures' ? (got to be better than the Chalder CODES cbt)
  3. SNT Gatchaman

    Rapidly evolving Creutzfeldt–Jakob disease in COVID-19: from early status epilepticus to fatal outcome, 2022, Olivo et al

    Rapidly evolving Creutzfeldt–Jakob disease in COVID-19: from early status epilepticus to fatal outcome Olivo, S., Furlanis, G., Buoite Stella, A. et al. We report the case of a 70-year-old man coming to our attention for new onset refractory status epilepticus (NORSE) in a rapidly evolving CJD...
  4. B

    Microvascular stabilization via blood-brain barrier regulation prevents seizure activity, 2022, Greene et al.

    https://www.nature.com/articles/s41467-022-29657-y Abstract Blood-brain barrier (BBB) dysfunction is associated with worse epilepsy outcomes however the underlying molecular mechanisms of BBB dysfunction remain to be elucidated. Tight junction proteins are important regulators of BBB integrity...
  5. ME/CFS Skeptic

    Psychological and psychiatric aspects of psychogenic non-epileptic seizures (PNES): A systematic review Brown & Reuber 2016

    Psychological and psychiatric aspects of psychogenic non-epileptic seizures (PNES): A systematic review - PubMed (nih.gov) I thought this review from 2016 of Psychogenic non-epileptic seizures (PNES) was quite interesting because it suggests we know very little about this condition and that the...
  6. Sly Saint

    Epilepsy and non-epileptic or dissociative seizures (FND?)

    there was an episode of Diagnosis detectives on bbc last week: The cardologist turns out to be wrong. The neurologist explains that the seizures are either from epilepsy or 'dissasociative seizures'; interestingly they do conduct tests and manage to get results when the patient is actually...
  7. M

    Functional Neurological Disorders (FNDs) in the media

    Hospital, BBC 1, 19 March 2020 FND not ME On now, this is covering FND
  8. Trish

    UK Independent: 'The NHS is underprepared for a no-deal Brexit – and I am one of the thousands that might die as a result', 2019

    https://www.independent.co.uk/voices/brexit-no-deal-nhs-epilepsy-bipolar-medicine-stockpiling-a8855131.html?amp See link for the rest of the article.
  9. Binkie4

    Public Nice guidelines and Cannabis treatment for epilepsy and MS

    https://www.theguardian.com/society/2019/aug/08/watchdog-declines-to-back-nhs-cannabis-treatment-for-epilepsy There seem to be some worrying parallels with Nice’s review of guidelines for ME. If only clinical trials are considered as evidence, where do we stand? Also if the guidelines committee...
  10. Indigophoton

    Researchers discover novel mode of neurotransmitter-based communication

    Emphasis added. https://m.medicalxpress.com/news/2018-05-mode-neurotransmitter-based.html
  11. Indigophoton

    Cannabidiol Significantly Reduces Seizures in Patients with Severe Form of Epilepsy

    Posting this partly because the phase III study looked at safety and side effects at two different doses, which may be useful for people who are trying CBD. The article, http://neurosciencenews.com/cannabidiol-epilepsy-seizures-9076/amp https://www.nejm.org/doi/10.1056/NEJMoa1714631 Full...
  12. zzz

    ATOS nurse continues PIP assessment as epileptic claimant bleeds from mouth after multiple seizures

    ATOS nurse continues PIP assessment as epileptic claimant bleeds from mouth after multiple seizures From the article: It's reassuring to know that ATOS does not discriminate among conditions, and that PWME are not being singled out for abuse. :rolleyes:
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