Abstract
Objective
To explore the crisis of identity in Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) through the lens of Communities of Practice.
Methods
A closed Facebook group was created to gather qualitative data from participants diagnosed with CFS/ME (n = 22). Data were...
Opinion piece in the BMJ
Conclusion
Going forward, we recommend:
Acknowledging that patients with long term conditions may experience challenging forms of “identity loss” which may lead them to feel more vulnerable.
Addressing stigma in healthcare as well as in communities and workplaces...
https://www.thecut.com/2019/07/what-happens-when-lyme-disease-becomes-an-identity.html
This is a very long read and I've only skimmed through, but this is a topic I hoped someone would write about. From the comments it seems the article could be somewhat dismissive to patients.
This doesn't...
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