Ben Goldacre is heavily involved in this.
Major investment to transform mental health treatment research and further develop secure NHS data platform
Major investment to transform mental health treatment research and further develop secure NHS data platform — Nuffield Department of Primary...
I got my patient summary today and rather depressingly it states I have "chronic fatigue syndrome" (xa01f). Which the more I learn about the history of the term the more I find outright offensive.
So
1 what does "xa01f" mean ? and
2 can I get it changed on my patient record to read severe...
Physician Use of Stigmatizing Language in Patient Medical Records
Jenny Park; Somnath Saha; Brant Chee, Janiece Taylor; Mary Catherine Beach
JAMA Netw Open. 2021
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2781937
Key Points
Question What types of stigmatizing language are...
Background
The coronavirus disease (COVID‐19) pandemic has had far‐reaching effects upon lives, healthcare systems and society. Some who had an apparently 'mild' COVID‐19 infection continue to suffer from persistent symptoms, including chest pain, breathlessness, fatigue, cognitive impairment...
I'm under a rheumatologist at the moment, who's actually quite helpful. The last correspondence I got from him after a telephone review appointment contained some innaccuracies, although they weren't malicious in anyway. The letter was sent to my GP, as is standard practise.
I'm going to write...
To those UK folks who have obtained their medical records:
What was included in your records? I have been given access via Patient Access - one of the four portals that the NHS now uses.
I have essentially been given documents - mostly scans of correspondence between my GP and consultants /...
I've come across a number of posts that mention the problems patients have with incorrect medical records, so thought it would be good to have a thread on how we can deal with this.
In the UK we actually do have more rights to get action taken on correcting our personal data, including our...
UK patients have the right to record NHS appointments (including covertly)
I just wanted to make people aware that it is well within their right to record NHS appointments (or any interactions with NHS staff). This right extends to interactions with NHS staff in the social care setting. I...
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