patient reported outcome measures

  1. SNT Gatchaman

    Refinement of post-COVID condition core symptoms, subtypes, determinants, and health impacts, 2024, Wang et al.

    Refinement of post-COVID condition core symptoms, subtypes, determinants, and health impacts: a cohort study integrating real-world data and patient-reported outcomes Yunhe Wang; Marta Alcalde-Herraiz; Kim López Güell; Li Chen; Lourdes Mateu; Chunxiao Li; Raghib Ali; Nicholas Wareham; Roger...
  2. pooriepoor91

    Potential Mechanism of Fatigue Induction and Its Management by JAK Inhibitors in Inflammatory Rheumatic Diseases 2024, Anna Felis-Giemza et al

    Open Access: Full article: Potential Mechanism of Fatigue Induction and Its Management by JAK Inhibitors in Inflammatory Rheumatic Diseases (tandfonline.com) Abstract It is well known that fatigue is a highly disabling symptom commonly observed in inflammatory rheumatic diseases (IRDs)...
  3. SNT Gatchaman

    Closed All eyes on PCS: analysis of the retinal microvasculature in patients with post-COVID syndrome—study protocol of 1 year prospective case–control study

    All eyes on PCS: analysis of the retinal microvasculature in patients with post-COVID syndrome—study protocol of a 1 year prospective case–control study Kuchler, Timon; Hausinger, Renate; Braunisch, Matthias C.; Günthner, Roman; Wicklein, Rebecca; Knier, Benjamin; Bleidißel, Nathalie; Maier...
  4. SNT Gatchaman

    Substantial differences in perception of disease severity between post COVID-19 patients internists & psychiatrists or psychologists…, 2023, Ruzicka+

    Substantial differences in perception of disease severity between post COVID-19 patients, internists, and psychiatrists or psychologists: the Health Perception Gap and its clinical implications Ruzicka, Michael; Ibarra Fonseca, Gerardo Jesus; Sachenbacher, Simone; Heimkes, Fides; Grosse-Wentrup...
  5. Andy

    Long COVID and episodic disability: advancing the conceptualisation, measurement and knowledge of episodic disability..., 2022, O'Brien et al

    Full title: Long COVID and episodic disability: advancing the conceptualisation, measurement and knowledge of episodic disability among people living with Long COVID – protocol for a mixed-methods study Abstract Introduction As the prevalence of Long COVID increases, there is a critical need...
    • Andy
    • Thread
    • 2022 darren brown long covid measurement paper patient reported outcome measures symptoms
    • Replies: 7
    • Forum: Long Covid research
  6. MSEsperanza

    Fatigue, patient reported outcomes, and objective measurement of physical activity in systemic lupus erythematosus, 2016, Mahieu et al

    Mahieu MA, Ahn GE, Chmiel JS, Dunlop DD, Helenowski IB, Semanik P, Song J, Yount S, Chang RW, Ramsey-Goldman R. Fatigue, patient reported outcomes, and objective measurement of physical activity in systemic lupus erythematosus. Lupus. 2016 Oct;25(11):1190-9. doi: 10.1177/0961203316631632. Epub...
  7. MSEsperanza

    The importance of patient-reported outcomes: a call for their comprehensive integration in cardiovascular clinical trials, 2014, Anker et al

    Anker, S D, Agewall, S, Borggrefe M et al, 2014, The importance of patient-reported outcomes: a call for their comprehensive integration in cardiovascular clinical trials, European Heart Journal, Volume 35, Issue 30, 7 August 2014, Pages 2001–2009, https://doi.org/10.1093/eurheartj/ehu205...
  8. MSEsperanza

    Operationalising cognitive fatigability in multiple sclerosis [...], 2016, Harrison et al

    Harrison, A. M., das Nair, R., & Moss-Morris, R. (2016). Operationalising cognitive fatigability in multiple sclerosis: A Gordian knot that can be cut? Multiple Sclerosis Journal, 23(13), 1682–1696. doi:10.1177/1352458516681862 sci-hub.se/10.1177/1352458516681862 Abstract Background...
    • MSEsperanza
    • Thread
    • cognitive fatigability cognitive fatigue moss-morris multiple sclerosis objective measure patient reported outcome measures
    • Replies: 2
    • Forum: Other health news and research
  9. ME/CFS Skeptic

    Influence of Priming on Patient-Reported Outcome Measures: A Randomized Controlled Trial, 2016, Claessen et al.

    Abstract Background: Patient-reported outcome measures (PROMs) are influenced by psychosocial factors, but it is unknown whether we can influence PROM scores by modifying the mindset of the patient. Purpose: We assessed whether priming affects scores on PROMs. Methods: In all, 168 patients...
  10. Andy

    Bias caused by reliance on patient-reported outcome measures in non-blinded randomized trials: an in-depth look at exercise therapy for CFS, 2020,Tack

    Paywall, https://www.tandfonline.com/doi/full/10.1080/21641846.2020.1848262 Sci hub. no access at time of posting. ETA: Corrected access details.
  11. ME/CFS Skeptic

    Let’s talk about pain catastrophizing measures: an item content analysis (2020) by Crombez et al.

    This seems to be an important article, hits many points and arguments that have been made repeatedly on this forum, namely that there is a problem with the content validity of questionnaires that measure catastrophizing. Here the Belgian authors looked at the validity of six pain...
  12. Sly Saint

    Developing and pretesting a new patient reported outcome measure for paediatric CFS/ME: cognitive interviews with children, 2019, Crawley et al

    Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children full paper https://jpro.springeropen.com/articles/10.1186/s41687-019-0156-8 eta:
Back
Top Bottom