uk clinics

BACME Position Paper on the management of Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) October 2020, updated 2022 https://bacme.info/wp-content/uploads/2022/05/BACME-Position-Paper-on-the-Management-of-ME-CFS-October-2020.pdf We have probably discussed this before. I want to...

Forming a consensus opinion to inform long COVID support mechanisms and interventions: a modified Delphi approach Background Current approaches to support patients living with post-COVID condition, also known as Long COVID, are highly disparate with limited success in managing or resolving a...

Seen the following article recently shortly after a sibling participated in a similar study https://mecfsskeptic.com/psychosomatic-history-of-multiple-sclerosis/ this too though much older - https://forum.mssociety.org.uk/t/mi...research-at-the-heart-of-disability-cuts/9260 shocking and a...

Developing, optimising and implementing a blended digital self-management tReatmEnt for FatigUe in multiplE scLerosis (REFUEL-MS) https://fundingawards.nihr.ac.uk/award/NIHR203290 https://www.refuel-ms.com/ Chief Investigator(s): Professor Rona Moss-Morris Co-investigators Start Date...

Re CBT; just found this https://www.topdoctors.co.uk/medical-dictionary/cognitive-behavioral-therapies# although, I just spotted that it was created in 2014 and updated in 2017, so long before the new guidelines. However, their pages on CFS have not been updated since 2015 and still have...

I watch Philosophy tube and the trans lady who makes the channel recently put out a video about how difficult it is to get gender reassignment in the UK. It goes over GP refusals to treat and long waiting times and lack of provision of care. Its very relatable as an ME/CFS patient were we have a...