Closed ‘The Index of ME Symptoms (TIMES)’, developing a clinical assessment toolkit for ME/CFS

Developing a clinical assessment toolkit for people with ME/CFS and clinical services.
Part 1: The Index of ME Symptoms (TIMES)

We are asking adults who have been diagnosed with myalgic encephalomyelitis (ME) (also known as chronic fatigue syndrome (CFS)), including those whose ME/CFS was triggered by a covid infection (also known as long covid) in the UK. to complete this online questionnaire.

It is the first stage of a research study to develop a clinical assessment toolkit for ME/CFS. We are working with PwME/CFS and clinicians in ME/CFS specialist services to co-produce a series of patient reported outcome measures (PROMs) which will help PwME/CFS and services identify, understand and quantify people’s symptoms and disabilities; support goal setting and treatment planning; and monitor changes.

The work is led by Prof Sarah Tyson (University of Manchester), who has ME herself, working with other PwME/CFS, clinicians working in ME/Services and the ME Association.

This questionnaire assesses PwME/CFS’s symptoms (called The Index of ME Symptoms (TIMES)) and we are checking that the questions make sense and produce good quality information. We will also explore sub-scales for people with very/severe ME/CFS so they do not have complete the whole questionnaires, all of the time.

More, and take part, at https://www.qualtrics.manchester.ac.uk/jfe/form/SV_6thFs23wnA95Lca

 

Wow that was big but I just ploughed through it