“I Probably Am Being a Naughty Boy, But…” Reasons for Non-Adherence to Prescribed Medication, as Perceived by People Living with [IBD:...], 2025,King+

Sly Saint

Sly Saint

Senior Member (Voting Rights)
“I Probably Am Being a Naughty Boy, But…” Reasons for Non-Adherence to Prescribed Medication, as Perceived by People Living with Inflammatory Bowel Disease: A Qualitative Study
Kathryn King
,
Christine Norton
,
Awa Jammeh
,
Trudie Chalder2 Department of Psychological Medicine, Institute of Psychiatry, Psychology and Neuroscience, King’s College London, London, UK
&
Wladyslawa Czuber-Dochan

Abstract​

Purpose​

Inflammatory bowel disease (IBD) is treated with medications to induce and maintain remission. However, many people with IBD do not take treatments as prescribed. Identifying and understanding reasons behind medication non-adherence in IBD is critical.

Patients and Methods​

Semi-structured interviews were recorded and transcribed verbatim. Braun and Clarke’s principles of reflexive thematic data analysis were followed.

Results​

Twenty people living with IBD were purposively selected and interviewed. Four main themes were identified: 1) Context: adherence was impacted by the context of care individuals received, daily activities, physical and emotional well-being and relationship with others; 2) Battles: with IBD, with healthcare professionals and/or with IBD medication; 3) Medical treatment: treatment type, efficacy, side-effects and treatment requirements influenced adherence, as did an individual’s treatment beliefs; and 4) Knowledge, learning, understanding and experience of IBD as a condition and its treatment typically promoted adherence. Yet treatment information was frequently not offered by healthcare professionals, leading individuals to self-educate and develop personal understanding, which with experience, influenced their adherence, both positively and negatively.

Conclusion​

Medication adherence is a journey, influenced by multiple determinants. IBD diagnosis is a critical stage where individuals require compassionate care from both multidisciplinary health professionals and personal networks. Clear treatment information should be provided, with self-education encouraged through trusted resources. To promote adherence and establish treatment routines, patients must feel fully informed, confident and comfortable in their shared decision-making on treatment that will suit their lifestyle.

 
As if someone would actually say that phrase quoted unless they’d been coerced into ‘performing the expected role’ as we patients get stuck onto us

What they want to say if they weren’t feeling intimidated into not being the person they are is probably something entirely different but they are just getting intimidated that the listener will either not believe, sneer at or think ‘who do you think you are’ so the poor patient has to go into ‘please sir can I have some more ‘ mode acting all humble

It does however sound exactly as some professionals would play act patients as or if they were writing what they thought patients might say trying to guess their language would write

It feels a bit like when I watch a tv drama that isn’t period drama where I’m cringing because it’s a character of a 35yr old woman talking about ‘being up and down like a brides nightie’ or some other phrase where I think a woman just would not say that

But maybe I’m wrong
 
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