posted by The ME association, who are a member of this organisation. 2025: Clinical Post Covid Society Conference for clinicians, researchers and health services commissioners The #ClinicalPostCovidSociety (CPCS) is asking clinicians, researchers and health services commissioners – to kindly join them for the annual conference in Birmingham on 26th March 2025 To find out more and view the programme of events click the link below: https://meassociation.org.uk/cpcc N.B. This is an in-person event only the conference programme actually calls it: POST ACUTE INFECTION CONDITIONS (PAIC) ANNUAL CONFERENCE PROGRAMME I can see only one reference to ME/CFS on the listings: ”Harriet Campbell (Presented by Jo Bond-Kendall): Clinician perspectives on the sil and differences between Long COVID and ME/CFS in Children and Young People Surveillance Project|” & the first session is “LONG COVID AND OTHER POST INFECTION ILLNESS IN 2025: THE UNRECOGNISED PANDEMIC IN ADULTS, CHILDREN AND YOUNG PEOPLE”
Further information about this society from the The ME association https://meassociation.org.uk/health-social-care/updates/the-post-covid-society/ [Mod edit to fix link]
There is some comment on the conference here. Mainly on the overlapping with BACME and the Bath Clinic with Jo Bond Kendall. Long Covid charities look pretty involved with the CPCS. https://twitter.com/user/status/1905197203888500988
Same old crap. A few competent professionals trying to solve this, mixed with a bunch of interlopers who can't quit failing. Until something pushes things forward, none of this will change. The rehab cheerleaders obviously will never stop pushing their business, it's all they have and they're not even interested in facts. It's small in all this, but it's still somewhat funny that most of the original gang are still active, minus Peter White, and yet they are total non-factors, they may as well all have been dead years ago. They made this paradigm what it is, this should technically be their moment of glory, their time under the spotlight, and they are totally irrelevant. Wessely made his career on this, and despite his huge influence, everyone seems content to pretend that he was never involved. He even got some award lately where his accomplishments were listed, and his main body of work was left out. Even though it's still massively influential over millions of lives. Which says everything. How everyone clearly understands that this ideology is worthless garbage, but the profession is too broken and utterly lacking in leadership and accountability that it doesn't matter. They built a tradition of going through some motions for reasons, and they will keep doing those ritual motions until money stops flowing to them. And so far, the main result has been more money flowing to them, so that's not about to happen.
It really is the same old crap. A good point about the old movers and shakers. However much they railled against just criticism, they won't pop their heads above the parapet. God knows what happened to Esther Crawley but it does seem some are happy to align themselves know with the new Long Covid Charities. Maybe they just don't know about them? Gregorowski, BACME & the awful Terry Segal just signed the Long Covid Kids petition.
From a strictly strategic perspective, there is probably value here to the old "keep your friends close, and your enemies closer". I really don't want any of them to take the lead on anything, but if all they do is sign on to demands for more, and they are one of many, it's probably preferable to them scheming on their own behind the scenes, as seems to be happening in Scandinavia. We don't know how differently they speak in private settings friendly to the product they sell, but they always moderate their claims when the audience is actually informed, especially when there is a public record of it. It's when they "wormtongue" their way in private that they can get away with selling the worst of their lies, which they can't back up in public. It would definitely be far preferable if they walked into the sea and never came back, but the alternative is the secret scheming where they sell bridges to nowhere to people who badly want to believe that there's good value in it. This has never worked out for us. That is, as long as all they do is sign on. There is no point in having them involved in anything beyond that, they have nothing at all to contribute.
