A Messiah in the Norwegian health system? Lightning Process and the Norwegian medical establishment - Blogpost by Nina E. Steinkopf (2019)

[Kalliope]

Nina E. Steinkopf has had an email exchange with the Norwegian Public Health Institute after her blog post A Messiah in the Norwegian health system?
This has resulted in a new blog post which includes the correspondence between them with themes as Lightning Process and the Cochrane review on GET. NPHI writes among other:
- as an institute we do not have any defined view on this but seek and compile knowledge whilst requiring quality to the knowledge we obtain. It’s founded in a desire to understand and thereby contribute.

Folkehelseinstituttets kontroversielle ME-forskning
English translation: The Norwegian Public Health Institute's controversial ME-science

The Norwegian Public Health Institute's assignment is to share quality-assured information, advise on public health and prevent illness and health damage. When it comes to the illness ME, however, NPHI refers to controversial science that aggravates the situation for patients.

Tagging @Michiel Tack and @dave30th

If anyone wants to share their thoughts and join a debate on social media. The Norwegian Public Health Institute is tagged in the tweet.

 

[ME/CFS Skeptic]

Nina E. Steinkopf has had an email exchange with the Norwegian Public Health Institute after her blog post A Messiah in the Norwegian health system?

I would say well done by Nina E. Steinkopf, although I do not know all the details of this.

I admit that I haven't read up with everything on the Lightning process, for the simple reason that I thought this was so self-evidently absurd, it would not be taken seriously.

The fact that Per Magnus co-wrote an article with Live Landmark (a journalist) promoting LP in the Norwegian Medical Association is really puzzling to me.

 

[Esther12]

The NPHI looks like an absolute disaster for patients. To me, it seems that it's allowed some quacks to become their 'CFS experts', and now the whole system is committed to standing up for them while pretending that they're defending science in the face of anti-science activists.

 

[rvallee]

The NPHI looks like an absolute disaster for patients. To me, it seems that it's allowed some quacks to become their 'CFS experts', and now the whole system is committed to standing up for them while pretending that they're defending science in the face of anti-science activists.

Escalation of commitment never ends well. A pointless mediocre ideology has somehow forced health authorities in several countries to commit themselves to promote and defend quackery rather than admit the obvious. For something that has the exact same basis of evidence as astrology. Accountability can't come soon enough. Meanwhile vulnerable sick people are the only ones paying the price for this folly.

The need for unalienable rights to health care could not be more obvious, mirroring principles of a justice system with due process, appeals, transparency, etc. The premise of the system is that physicians are infallible, despite being obviously wrong. This is just a symptom of a system with broken incentives and little to no oversight. Fixing this one problem won't be enough.

 

[Barry]

Escalation of commitment never ends well. A pointless mediocre ideology has somehow forced health authorities in several countries to commit themselves to promote and defend quackery rather than admit the obvious.

It's all about cost saving as I see it. Drastically cut down on the obvious costs, whilst totally ignoring & rejecting any consequential costs. Situation normal.