Thesis A qualitative study to explore children's experience of having long-Covid (significant percentage on ME/CFS), 2023, Noorderhaven

From: Dr. Marc-Alexander Fluks

Source: University of Surrey Date: April 2023, online September 29, 2023 URL: https://openresearch.surrey.ac.uk/esploro/outputs/doctoral/99813065702346

https://openresearch.surrey.ac.uk/v..._INST&filePid=13193610370002346&download=true

A qualitative study to explore children's experience of having long-Covid
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Carolyn Noorderhaven - School of Psychology, Faculty of Health and Medical Sciences, University of Surrey, U.K.

Abstract

There is currently uncertainty and limited research surrounding long-COVID in the paediatric population. Reports are conflicting regarding the prevalence, duration, and impact of long COVID on children. Despite the limited evidence, it is becoming increasingly apparent that numerous children are experiencing long-term physical and psychological effects of COVID19 many months after the initial infection.

This thesis aimed to investigate the lived experience of children with long-COVID. Part one of this portfolio presents a systematic review of the experiences of parents who provide care for a child with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The findings of the review indicate a paucity of research on parents' experiences. However, it is apparent that caring for a child with ME/CFS is an all-encompassing, relentless undertaking, which can detrimentally impact parents' well-being, everyday life, and relationships.

Given both ME/CFS and long-COVID are both post-viral illnesses, sharing similar symptoms, with low-level immune system activation. It may be conjectured that the existing knowledge on children with ME/CFS could benefit both children suffering from long-COVID and help inform parents on how best to care for their children. Part two of this portfolio presents an empirical paper exploring the lived-experience of young people with long-COVID. Reflexive thematic analysis found three key themes, specifically, the perceived barriers to coping with long-COVID, ongoing associated emotional distress, and a desire for an integrated approach to long-COVID care.