An audit of 12 cases of long COVID following the lightning process intervention examining benefits and harms, 2025, Arroll

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Dolphin, Feb 24, 2025.

  1. forestglip

    forestglip Senior Member (Voting Rights)

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    I think changing "fully recovered" to "reported that they fully recovered" would be okay.

    I think that'd be useful, but I don't know enough about LP to know if I'm saying things about it accurately. Hopefully someone else can add something about that.

    This makes it sound like it was only a portion of those who completed the LP:
     
  2. Trish

    Trish Moderator Staff Member

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    They do indeed pre select, and only take on people willing to believe what they are told.

    The article is advertising, not a scientific report.
     
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  3. Utsikt

    Utsikt Senior Member (Voting Rights)

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    Less that a year into ME from Covid, I got turned down by an LP practitioner because I was working on my mental health with a therapist.

    I’ve also heard of many that are turned down because they aren’t willing to believe in LP. There’s a famous case of an ME patient in Norway that was dropped from Landmark’s study because she posted negative opinions about LP on social media. They stalked her and excluded her.
     
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  4. Sasha

    Sasha Senior Member (Voting Rights)

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    But it was unclear to me (on a really skimpy reading) whether the practitioner had put forward all of their clients for the interviewer to select from. Maybe they had 100 clients and only chose the best 20? But as I said, I haven't read it properly, sorry! Bit short on time.
     
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  5. forestglip

    forestglip Senior Member (Voting Rights)

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    I added a paragraph and slightly changed the last paragraph (bolded):
     
    Last edited: Feb 24, 2025
  6. Utsikt

    Utsikt Senior Member (Voting Rights)

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    Parker has written about it:

    Criteria for being offered ongoing care after assessment differ between LP and SMC approaches; LP assessment focuses on psychological readiness to engage with the training and its concepts, while SMC assessment focuses on diagnosis. LP clients are encouraged to engage with LP materials (audio/book) before completing an online form and pre-course telephone call which includes assessment of their psychological readiness to engage, belief that change is possible using the LP and belief in capability to recover. For example, questions see Parker p. 122 [Citation10]. Telephone coaching is provided to support clients to become psychologically ready to proceed to the course at the facilitator’s discretion.

    https://www.tandfonline.com/doi/full/10.1080/21641846.2021.1935373
     
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  7. forestglip

    forestglip Senior Member (Voting Rights)

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    It's possible, but I don't think it says one way or the other.
     
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  8. Yann04

    Yann04 Senior Member (Voting Rights)

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    So basically, they are handpicking those that already believe it will work. And making them pay an enormous sum which will induce sunk cost fallacy.
    Then doing their voodo magic.
    Then asking the people if it worked.
    Bearing in mind some of the voodo magic instructions include pretending it worked even if it didn’t.
    Then suprise, the handpicked people told to say it worked say it worked!
    The fact this is published in journals is astonishing.
     
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  9. Utsikt

    Utsikt Senior Member (Voting Rights)

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    Relevant bits about the participants:
    The LP practitioner agreed to participate in an independent audit of patients completing treatment and obtained permission to provide the study team with names, email addresses and mobile phone numbers. Our interviewer followed up with participants who were not initially contactable to avoid responder bias.

    Of 20 patients completing the LP, 12 (60%) were contactable; all agreed to be interviewed and the time elapsed since completing the LP was a median of 8.5 months with a range of 2 to 12 months.
     
  10. Utsikt

    Utsikt Senior Member (Voting Rights)

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    It might be worth pointing out the bolded sentence in the conclusion. Especially in context of the bolded sentence that came just before it.

    They also dismiss reports of harm elsewhere as issues with the interpersonal skills of the practitioner. But the most telling part is that they say that this is ‘in their experience’, yet they claim that this is an ‘independent review’. How can it be independent if they have enough ‘experience’ with LP to say anything about the source of claims of harm?

    From the paper:

    The NICE concern about harm was based on a qualitative study (of nine patients and three parents) where most participants found considerable benefit, and two participants complained about the attitude of the staff administering the LP.[6] Our experience with such complaints is that there can be confusion regarding the viewpoint of an occasional therapist with limited interpersonal skills with the LP intervention. Our study also of twelve participants found no harms. In the Bristol trial, no harm was reported; the participants in our audit also reported no harm. Long COVID symptoms are prevalent, disabling, and costly, and there is a need to develop evidence-based treatment options. It is impossible to generalize our study findings to a broader group of patients because of the small sample size and restricted demographic variation. Nonetheless, it is encouraging that many patients can get so quickly.

    Conclusion
    All participants experienced debilitating fatigue. All participants made significant improvements; some had cures after performing the LP and did not experience any harm and was congruent with the Oslo Consortium Statement.[2] This is the first study to report outcomes for patients with long covid with the lightning process. Primary care clinicians can be assured that this is likely to be a safe and effective intervention. Randomized trials are indicated.
     
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  11. forestglip

    forestglip Senior Member (Voting Rights)

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    Good points. The contrast between those two sentences is especially jarring.
     
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  12. forestglip

    forestglip Senior Member (Voting Rights)

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  13. Utsikt

    Utsikt Senior Member (Voting Rights)

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    They also say this in the abstract:

    This study suggests that the lightning process is a promising and safe intervention for symptoms of long COVID. Primary care clinicians can refer patients for treatment with a high chance of benefit without fear of harm.
     
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  14. forestglip

    forestglip Senior Member (Voting Rights)

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    Maybe I'll add this paragraph:
     
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  15. Utsikt

    Utsikt Senior Member (Voting Rights)

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    Maybe this is more precise? It also says where the statements are.

    Furthermore, the authors make multiple statements about the evidence for clinical care that directly contradict their statement on the generalizability of this evidence. These definitive statements can be found in the abstract and the conclusion:
    (…)
    Yet the paper also …
     
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  16. forestglip

    forestglip Senior Member (Voting Rights)

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    Yes, I think that's better, thanks.
     
  17. Utsikt

    Utsikt Senior Member (Voting Rights)

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    @forestglip you might also want to add that they don’t mention that an audit can’t be used to determine the efficacy of a treatment. If they try to determine the efficacy, why isn’t it subject to ethics clearance etc.? It seems like they want to have their cake and eat it too.
     
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  18. Utsikt

    Utsikt Senior Member (Voting Rights)

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    @forestglip the limited sample size and demographics aren’t the main issues in terms of generalizability
     
  19. Trish

    Trish Moderator Staff Member

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  20. forestglip

    forestglip Senior Member (Voting Rights)

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    I only want to include things I can personally defend, and I'm not familiar enough with those concepts to do so.

    That paragraph is just showing that they are recommending LP despite their own disclaimer that their evidence can not be used to recommend it. I include some other limitations in the other paragraphs.
     

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