Articles on NICE guidelines 'pause'

Charities dismayed as move to stop recommending graded exercise therapy is opposed by some medical groups

https://www.theguardian.com/society...s-new-me-guidance-therapy-row-chronic-fatigue

 

https://industrinews.com/health-wat...over-chronic-fatigue-as-it-delays-new-advice/

 

It is interestingto see Alastair Milla r in that Guardian article in effect calling upon the "therapeutic nihilism" excuse. Plus ca change.

 

This article also seems to be breaching the press embargo: “Nice last issued recommendations on ME in 2007. New final guidance, seen by the Guardian and roughly in line with a draft report published last November, would have abandoned the GET recommendation and also advised that CBT – a talking therapy commonly used to treat anxiety and depression – is not curative for ME.”

 

"Without ......., there is nothing" works on so many levels!

 

https://www.ncic.nhs.uk/consultants/alastair-miller

A pretty weak argument from the Deputy Medical Director of the Joint Royal Colleges of Physicians Training Board (JRCPTB).

 

Breaking news: scientists have discovered that dinosaurs can use email!

 

Correct, this is literally because of your garbage pseudoscience. But of course they can't even understand this. But this needs to be repeated every time someone trots out this damn line: yes, there is nothing else and it's your fault for squatting the damn place, now step aside so the real work can get started.

What a jerk.

 

I'm afraid I had been calm all day until I saw this article. It is testing me.

 

Why does Grover write this kind of stuff? I do not understand the mentality of these journalists - do they really believe this stuff?

 

Yea he's ignoring the fact that in illness like Alzheimers there are no diagnostic tests or treatments (think that's still true in the UK) and that the answer is research e.g. GWAS. It's not a case of sticking with things we know don't work - there are options i.e. research. OK research doesn't give Doctors a treatment today - but as @Jonathan Edwards a Doctors role is to diagnose and treat --- and to say -- there is no evidence based treatment --- where that is the case.

Sorry I hope I'm not misquoting Jonathan.

 

https://www.theguardian.com/society...TkUi428HkalML6wCRAU0QnOLMx0jVUlWmduLFIOLDS2NE

Not sure if you can put links but guardian is now reporting on it

note lots of space for Prof Millers views.

 

Article in Telegraph

might need subscription
Health watchdog pauses plans to scrap therapy and exercise as treatments for ME

Nice delays publication of controversial guidelines on diagnosing and managing the condition following backlash from doctors

https://www.telegraph.co.uk/news/20...uses-plans-scrap-therapy-exercise-treatments/

 

Allister Miller has a vested interest, due to his intricate involvement with the PACE trial (quote from 2011):

https://www.sciencemediacentre.org/...reatments-for-chronic-fatigue-syndromeme-2-2/

Edit: Just laughed when I imagined how @dave30th would report this...

 

I had to keep refreshing to be able to read it as I'm not a subscriber but I managed to read it. It's better than the Guardian piece.

 

The article is bad but... front page.

https://twitter.com/user/status/1427743612276723725

 

https://www.independent.co.uk/news/health/nice-chronic-fatigue-exercise-therapy-covid-b1904127.html

The Independent have picked up part of #MEAction UK press release too.

 

BBC Outrage at chronic fatigue syndrome advice update pause

quote:
Andrew Goddard, president of the Royal College of Physicians, said: "We were extremely concerned that the final guidelines proposed by NICE may not have taken into consideration the extensive comments we made to the draft version, particularly in relation to treatments we know to have significantly benefited many patients.

"There is reasonable evidence, for example, that graded exercise therapy helps a group of patients with ME/CFS and, while not without risk, our experts strongly support its ongoing use as an option in this condition.

"Similarly, our experts would strongly recommend specialist individualised rehabilitation for patients with complex rehabilitation needs.

"We hope that in delaying the final publication of these guidelines, NICE will re-consider our evidence submitted and incorporate it into their final publication."