Bateman Horne Center Online Education Series, 2018

[Trish]

Online Educational Series
A six part educational video series designed to empower patients and their advocates with the tools to communicate with their healthcare providers.

VIDEO 1: Getting the Right Diagnosis 38 minutes

VIDEO 2: Activity Intolerance & Post-Exertional Malaise 40 minutes

VIDEO 3: Restorative Sleep 27 minutes

VIDEO 4: Chronic Widespread Pain 50 minutes

VIDEO 5: Cognitive Impairment 19 minutes

VIDEO 6: Orthostatic Intolerance (OI) Syndromes 34 minutes

 

[Trish]

I haven't had time to watch these yet. Dr Bateman is doing a lot to help get ME doctors in the USA working together to educate each other, other doctors, and patients.

 

[ahimsa]

Thanks for posting this list of links along with the length of each video, @Trish

Very helpful!

 

[Webdog]

I don't like how Bateman combines ME/CFS and Fibromyalgia. These conditions should be talked about in separate videos.

This is the primary reason I haven't recommended this video series to others.

 

[ahimsa]

I don't like how Bateman combines ME/CFS and Fibromyalgia. These conditions should be talked about in separate videos.

This is the primary reason I haven't recommended this video series to others.

Thanks for letting me know, I had not seen that.

I was just going to skip to video 6 on Orthostatic Intolerance.

 

[Snow Leopard]

I don't like how Bateman combines ME/CFS and Fibromyalgia. These conditions should be talked about in separate videos.

This is the primary reason I haven't recommended this video series to others.

Yes, I feel the same way. ME/CFS and Fibromyalgia are not the same.

 

[Sly Saint]

I don't like how Bateman combines ME/CFS and Fibromyalgia. These conditions should be talked about in separate videos.

This is the primary reason I haven't recommended this video series to others.

I have watched a few of them and found them quite heavy going (I'm not sure exactly who the target audience are) and there was a lot of emphasis on Fibromyalgia which got confusing at times.

Also in the bit on ME/CFS diagnostic criteria she didn't (as far as I can recall) mention the ICC which I thought was odd.

 

[Trish]

I don't like how Bateman combines ME/CFS and Fibromyalgia. These conditions should be talked about in separate videos.

This is the primary reason I haven't recommended this video series to others.

I have only just got around to watching the first of the videos. I disagree that talking about FM and ME/CFS on the same videos is a problem. I found this first video helpful in clarifying the differences between the diagnostic criteria for the two conditions, and in clarifying the different approaches to treatment.

She makes it very clear that FM can be helped by meds that tackle the pain and by low impact exercise, but that ME/CFS is much harder to treat.

I thought the clear distinction she made between low impact exercise being helpful in FM but making symptoms worse in ME/CFS was important for doctors and patients to understand.

She makes it clear that they are two different conditions, but that some people have both, and that people can be misdiagnosed between the two and end up with the wrong treatment and management strategies. For doctors diagnosing, it's vital that they don't put people in the wrong category which will lead to wrong treatment.