Bridging Uncertainties: Exploring the Lived Experiences of Pediatric Long-COVID-19 Through ME/CFS Caregiver Narratives, 2024, Komalasari, book chapter

https://www.igi-global.com/chapter/bridging-uncertainties/334380



Bridging Uncertainties: Exploring the Lived Experiences of Pediatric Long-COVID-19 Through ME/CFS Caregiver Narratives
Rita Komalasari
Source Title: Clinical Practice and Post-Infection Care for COVID-19 Patients
Copyright: © 2024 |Pages: 21
DOI: 10.4018/978-1-6684-6855-5.ch009
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Abstract
The study aims to bridge knowledge gaps by exploring the challenges parents face caring for children with ME/CFS, using their narratives to understand long-term. This approach seeks to uncover parallels, enhancing our understanding of pediatric long-COVID-19 and informing effective caregiving strategies. In the authors' exploration, a comprehensive literature study is the guiding light. A rigorous analysis of existing research illuminates the similarities between long-term COVID-19 and ME/CFS experiences in children. The analysis revealed striking similarities between the caregiving experiences in ME/CFS and long-term COVID-19 cases. Parents' narratives illuminated the relentless nature of these conditions, shedding light on the emotional toll they take. By recognising these parallels, healthcare providers and families can benefit from informed strategies, ultimately improving the quality of care provided to children affected by COVID-19. This research supports a more comprehensive view of pediatric long-term ICU illness, one that considers physical symptoms and psychological and social ones.
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Background

This research's findings can benefit many people, groups, and institutions: Pediatricians, infectious disease specialists, and mental health providers can use this research to comprehend long-term children's complex issues better. They can use this knowledge to improve care for afflicted children to create complete care plans that include medical and emotional support. Understanding long-COVID kids' emotional and cognitive issues can help instructors, counselors, and administrators. This insight can inform school support programs to ensure these students receive adequate adjustments and understanding. This research can comfort and enlighten parents of long-COVID children. It provides emotional support and coping methods to assist individuals in overcoming obstacles. This research can inform pediatric long-COVID public health initiatives. Policymakers can utilize this information to provide specialized healthcare, mental health assistance, and educational modifications for afflicted children. Researchers can use this study to study pediatric long-COVID. It may encourage scholarly research into the illness and its treatments. The research can help non-profits and community support groups build focused support programs for long-term families. These apps can solve problems and help where needed. This research can help many stakeholders make informed decisions, provide better assistance, and improve the well-being of children with long-term COVID-19 impacts.

This study enhances the profession and field in various ways: This study's thorough findings can help healthcare practitioners treat children with long-term COVID sufferers more compassionately. Understanding the condition's impact allows personalized medical and psychosocial therapies, improving patient outcomes and quality of life. This research can be used in medical education programs to teach future doctors about children's varied post-viral disorders. This information gives the next generation of doctors a holistic view of treating medical and emotional needs. This research can help policymakers and public health experts allocate resources and adjust policies. This could improve pediatric long-term patient support by creating specialized clinics, financing mental health treatments, and providing educational accommodations. The study's findings support pediatric long-COVID research. Researchers might expand on patterns and themes to study specific elements. This iterative research method can lead to focused medicines and interventions, boosting pediatric post-viral disease research. Mental health experts can address pediatric long-COVID patients' emotional issues. By acknowledging these challenges, therapists can better meet these patients' and families' psychological needs.

Key Terms in this Chapter
ME/CFS: Myalgic encephalomyelitis/Chronic fatigue syndrome (also known as ME/CFS): Extreme weariness that does not improve with rest and is sometimes exacerbated by physical or mental activity characterizes ME/CFS, a complicated and devastating chronic condition. Pain, disturbed sleep, and mental fog are just few of the symptoms that may be present. Everyday life may be severely hindered by ME/CFS, the actual cause of which is uncertain.

Quality of Care: The term “quality of care” is used to describe how well patients and communities benefit from medical treatment. It involves making sure that everyone has access to healthcare that meets their needs in a timely, cost-effective, and equitable manner. The provision of efficient and moral healthcare services to patients relies on the assessment and assurance of high-quality treatment.

Pediatric: In the context of medicine, “pediatric” refers to the subspecialty that focuses on the wellness of young people from birth through adolescence. Pediatricians and other medical practitioners focus on meeting the particular healthcare requirements of children and adolescents.

Long-COVID-19: Long-COVID-19, also known as post-acute sequelae of SARS-CoV-2 infection (PASC), is a syndrome in which patients, including children, continue to exhibit COVID-19-related symptoms and problems long after the initial phase of the sickness has passed. Persistent symptoms may have a major influence on an individual's quality of life by disrupting several bodily systems, including the respiratory, cardiovascular, neurological, and psychological ones.

 

Thank you to the author for this.

And thank you @Dolphin for posting this.

 

The excessive focus on psychosocial does not inspire confidence. It's not what patients need. And it's not what patients want, because it's not what they need. Until there are disease-modifying treatments, this is always a waste of effort and resources. If anything, it's doctors who need emotional management and behavioral change, so that they stop the cycle of neglecting what they don't understand, because they always neglect it.

 

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