CFSME ATLAS site

Robius said:
Thanks Jonathan! As a Norwegian, I think we as a country might be behind on our official view on ME and that's partly why my science interest has grown. If the site does more harm then good I will not hesitate on pulling it down, but I want to work on it a few months and see where it ends up.
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Velkommen! I hope you join us.

I think that having a searchable repository of ME/CFS research that’s tagged according to inclusion criteria, topic and so on is valuable no matter what.

The thing that might do more harm than good is when claims made in papers are presented as fact when they very often don’t hold up under scrutiny. Even lots of established truths are simply false.

With LLM specifically, there’s also the issue of hallucinations etc. that might end up spreading (slightly) wrong information that requires lots of effort to catch and correct.
 
Utsikt said:
Velkommen! I hope you join us.

I think that having a searchable repository of ME/CFS research that’s tagged according to inclusion criteria, topic and so on is valuable no matter what.

The thing that might do more harm than good is when claims made in papers are presented as fact when they very often don’t hold up under scrutiny. Even lots of established truths are simply false.

With LLM specifically, there’s also the issue of hallucinations etc. that might end up spreading (slightly) wrong information that requires lots of effort to catch and correct.
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Trish said:
Me too. I've split it in the thread title.
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I agree. Looking back, I was testing things and chose the name a bit too quickly. I may be able to change it later if people seem to find the site genuinely useful.
I am paying for it myself. I can manage that, but probably not for long if the site is not good enough to justify it. Still, I think we are not far from a point where systems like this will be able to do this extremely well with the right setup.

For now, I see this as version 0.1. Perhaps the right setup could eventually be developed in a group like this. I would be happy to build it.
I could share the setup I have today here, if that would be useful, and people could then give their input. It may be that this version is good enough to refine and harden, or it may be that a fresh start would be better.
 
Peter T said:
A bit of a tangent, but I am struggling to read the name as intended. I struggle not to see it as CFS-meat-las. The misreading as the word ‘meat’ tends to override for me other interpretations.

Increasingly ME/CFS is being used. It may be others do not have this problem, but personally I would find MECFSAtlas a clearer format.
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Agree.. was reading MEAT, and MECFSAtlas would be better!

Good to see the effort and welcome to forum! Best of luck w the project..
 
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