As a NICE stakeholder, S4ME can have input on this update process. I can't imagine that there is much, if any, interest here, we've got lots of other things to be getting on with, but just in case somebody wants to look at it, https://www.nice.org.uk/about/what-...ltation-developing-nice-guidelines-the-manual
Merged thread Note: this isn't specific to the NICE ME/CFS guidelines, this applies to all guidelines. https://www.nice.org.uk/about/what-...ltation-developing-nice-guidelines-the-manual
This is the sort of thing where I feel it would be really useful to have good patient engagement, but where we're unlikely to have the skills and time needed to meet the deadline. Anyone already super-well informed on these issues and able to knock out a quick submission? Setting the rules for how the rules are developed is a really important thing, but easily overlooked by advocates and campaigners.
From a NICE email, "Sections 1, 4, 6 and 7 of this draft manual and supporting appendices are now out for consultation. This is the first module of consultation for the updated manual. We hope that your organisation will submit comments on the draft manual sections. It is a valuable opportunity to ensure that the manual for developing NICE guideline recommendations considers issues important to your members. The consultation page has all the information you need to comment. The consultation will close at 5pm on 1 December 2022. If you have any queries about this consultation, please contact GuidelinesManualUpdate2022@nice.org.uk "