Covid-19 Longhauler Advocacy Project: A Comprehensive Guide for COVID-19 Longhaulers and Physicians: The PASC Master Document

This “Master Document” was created as a guide to help Longhaulers and their physicians work as a team in an attempt to get the patient back to good health and regain quality of life. A year into the Pandemic, we are still struggling to curb it and still lack understanding in Post-Covid Syndrome now being referred to as Post-Acute Sequela of Covid-19. There are now millions of Longhaulers in the United States alone and millions more around the world.

This document has been thoroughly built over months and is updated multiple times a month. It is imperative to save the link to this document as updates are saved automatically to google, but if you print it or save it to your desktop, you will only have access to the version you downloaded. Everything in this document is based off findings in Longhaulers only. Included information has been vetted and is known to commonly and frequently be found and occur in Longhaulers.

Longhaulers are facing extreme medical gaslighting and are having every aspect of life impacted by their illness. There are a lot of statements, tips and guidance related to these things within. Longhaulers, please use the information within to advocate for yourself, educate yourself and those you are surrounded by. Physicians and researchers, please use the information within to become familiar with PASC, longhauler experiences and needs. We are easily approachable and encourage collaboration, so please do not hesitate to contact us.

https://docs.google.com/document/d/1VfENjAiOBKryT-dIOFyU8CyEAAKVR5xk9WyvlZF-u4M/edit