Trial Report Development of an ME/CFS Online Screener, 2024, Cathey & Jason

Dolphin

Dolphin

Senior Member (Voting Rights)
https://www.mdpi.com/2673-8112/4/10/110

Development of an ME/CFS Online Screener
by
Paul Cathey
and
Leonard A. Jason


Center for Community Research, DePaul University, 990 W. Fullerton Ave., Chicago, IL 60614, USA
*
Author to whom correspondence should be addressed.
COVID 2024, 4(10), 1585-1598; https://doi.org/10.3390/covid4100110

Submission received: 28 August 2024 / Revised: 17 September 2024 / Accepted: 27 September 2024 / Published: 29 September 2024


Abstract

Several websites have offered patients opportunities to find out whether they meet the case definitions for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).

The current study describes a new online screener that can be completed by individuals who might like to determine if they meet the current ME/CFS criteria.

The website is available for anyone to use, and the feedback is more comprehensive than other site, particularly in providing data on how the participants’ data compares with a large ME/CFS patient population, as well as whether the current ME and ME/CFS case definitions are met.

Keywords:
myalgic encephalomyelitis/chronic fatigue syndrome; screener; case definitions

https://twitter.com/user/status/1841823579127660858
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Mainly about turning DSQ questionnaires into an online diagnostic screening tool. There's a link to it but I haven't tested it. The screenshots in the paper suggest all the issues with the DSQs discussed elsewhere have been transferred to the app. No surprises there

What did surprise me was that are so many other online screeners out there already. There are links to them in table 1 if anyone has the energy and interest to try them
There are seven existing online scored self-assessments to measure symptom load for ME/CFS. Two use the IOM case definition (Solve M.E., Re-origin), two use the Fukuda criteria (Medindia, Teitelbaum), one uses ME-ICC (SGME), one uses Fukuda, IOM and CCC (LMAI), and for one it was difficult to tell which case definition is in use (Ubie Health). Each of these tools uses a minimum number of symptom questions ranging from 5 to 13. The longest is the Ubie Health questionnaire that, depending on responses, offers optional additional symptom questions for increased accuracy beyond its basic twelve questions. Each of these tools provides a useful starting point for exploring individual symptomatology. See Table 1 for the comparison of these screeners.
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