Emerge Australia Research meeting Twitter summary

[Jaybee00]

Thread

 

[Trish]

Thanks @Simone for doing the Twitter thread. I hope Emerge will write this up as an article or series of articles, or better still ask each of the speakers to write a piece about their work.

 

[Simone]

Thanks, @Trish! If we have the resources, we will definitely produce a summary (always too much to do, and not enough people/time etc).

For anyone who missed the session, the recording will be available soon. I’ll post a link when it’s up!

 

[Hoopoe]

I wanted to highlight how a hypothesis of mitochondrial dysfunction is being proposed by mitochondrial researchers (Paul Fisher). This isn't just an idea from amateur patients.





There was also a bit about a diagnostic test.



And this graph is interesting because it looks like the biphasic peak in the onset of ME/CFS that was reported in a study from Norway can also be seen in data from two different biobanks, one Australian, one US-American.

 

[Trish]

I think a point being made on another thread that ME/CFS is not a mitochondrial disease is about mitochondrial disease being genetic disease, not aquired malfunction which seems to be what is being suggested here for ME/CFS.

 

[Simone]

For anyone who missed the research panel, the video is now available. A written summary will also be published.

https://www.emerge.org.au/mecfs-research-panel