Evaluation of Experiences and Impact of Patient Engagement on e-Health Research: A Qualitative Study, 2022, Pan et al

ABSTRACT

Background: Health technology has increasingly moved toward adopting a "user-centred design" approach to include the user/patient throughout the innovation and design process; however, few studies have evaluated the patient's experience of such an engagement.

Objective: The aim of this study was to explore the role of patient engagement (PE) within e-health innovation research.

Method: Using qualitative descriptive methodology, semi-structured interviews were conducted with eight participants (patient partners and research/development team members).

Findings: Key themes were centred on enablers of, challenges to and methods of improving PE.

Conclusion: PE must be prioritized from study conception, explicitly programmed into study conduct and valued by integrating patient partner input.

Key Points

• This study provided a multi-stakeholder perspective on patient engagement (PE), revealing that stakeholders’ perspectives differed and must be considered separately when planning for engagement.
• This study identified strategies to improve PE during the development of an e-health tool, including providing support
  for patients throughout the process, ensuring thorough team communication, making patients feel valued for their contributions and fostering a positive research environment.
• Overall, PE helped ensure the relevance, usability and appropriateness of an e-health tool for different patient demographics; however, the process of PE should pay special attention to recruiting representative patient populations.

Open access, https://www.longwoods.com/content/2...ment-on-e-health-research-a-qualitative-study

 

"Conclusion: PE must be prioritized from study conception, explicitly programmed into study conduct and valued by integrating patient partner input."

Objective achievement agenda Item 1. - Learning to write in jargon free common language.

 

As long as e health is being designed solely for the purpose of keeping patients away from medical institutions it will of course fail the patients . Cost cutting never improves any service .