First test for long Covid gets EU approval, August 2022 - IncellDx incellKINE Long COVID test

Discussion in 'Long Covid news' started by John Mac, Aug 31, 2022.

  1. hinterland

    hinterland Senior Member (Voting Rights)

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    But wait, how can she have the elevated cytokines immune signature if the Lightning Process already cured her?... Phil Parker must really be scratching his head over that one.
     
  2. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    The Times piece is paywalled for me.
    I think she maybe switched my comments around to make them sound different. But I never saw the proof.
     
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  3. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

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    (A portion of?) your quote is included in the extracts section on the ME Assoc page. I presume it's reproduced in the same order as in The Times —

    It does seem to also include a comment on drugs, but I don't know if there's anything in the Times article that that would relate to. I can't read it either but the summary implies it's just about the IncelDx test.

     
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  4. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Thanks to Robert I note that the Times piece includes:
    I am told my immune profile is exactly that of the “pure” long Covid group, with the three elevated cytokines they would expect. I’m surprised to hear this since I’ve been feeling much better for quite some time.

    Well that was a surprise that the test was bang on.
    Hopefully the irony of the next bit is not lost on all readers.

    As Karl Popper said, it is always hard to prove a theory right but it is often quite easy to show that it is completely useless.
     
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  5. Esther12

    Esther12 Senior Member (Voting Rights)

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    She had that previous article on the Lightning Process, that she mentions in this new article:

    Jo Edward's raising some concerns:



    She gets a 'positive' result but remains sceptical:
     
    Last edited by a moderator: Feb 10, 2023
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  6. forestglip

    forestglip Senior Member (Voting Rights)

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    It looks like this test might now be available to the public:

    "Our partnership with IncellDx, a leader in cellular diagnostics has led to the launch of the IncellKINE test, a cutting-edge chronic inflammation test capable of determining Long-COVID, Lyme Disease or ME-CFS, now available in the UK. The IncellKINE test offers an innovative approach to detect and understand long-term immune responses post COVID-19 infection, empowering with knowledge and peace of mind."

    Peplobio
     
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  7. Yann04

    Yann04 Senior Member (Voting Rights)

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    Have there been any geniune clinical trials of this test?
     
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  8. NelliePledge

    NelliePledge Moderator Staff Member

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    What does “capable of determining” Long Covid Lyme Disease or ME/CFS actually mean here. The stuff in the link only mentions Long Covid

    It isn’t actually saying in black & white that it can distinguish
     
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  9. forestglip

    forestglip Senior Member (Voting Rights)

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    Here are the references from that test page:

    Thread on the last reference:

    Immune-Based Prediction of COVID-19 Severity and Chronicity Decoded Using Machine Learning

    Weird that they just have two references and make it seem like four. One is just plain duplicated, the other they cited both the preprint version and the final version of the same paper.
     
    Last edited: Jun 30, 2024
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  10. Kitty

    Kitty Senior Member (Voting Rights)

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    Even if that were true, or meant anything...

    ...empowering how?

    And what knowledge? No one seems to understand long Covid any more than we do ME/CFS.

    What peace of mind? There's no treatment, and if you've got it, there's a pretty good chance you already know you do. In big, flashing, way-too-bright capital letters.
     
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  11. TiredSam

    TiredSam Committee Member

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    Why don't they just write "For novelty purposes only".
     
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  12. Kitty

    Kitty Senior Member (Voting Rights)

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    :laugh:

    Like the apparatus to measure what percentage of ginger people have in their hair?

    That was once a thing. Okay, so it was my auntie's neighbour sat in a kiosk at the village fête trying not to look like she worked on the cheese counter at British Home Stores, but she raised quite a bit for the Biafra famine.
     
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  13. Kalliope

    Kalliope Senior Member (Voting Rights)

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    This turned up in my Twitter newsfeed:

    For anyone planning on purchasing an @IncellDx
    test in the UK - I have been waiting 3 weeks for results to be told today (after numerous unanswered emails and promises of results) by @PeploBio that they are unable to process my test and I have to try and request a refund from incelldx. I also paid for a private phlebotomist to come out and take my blood which was excruciating as I’m so ill. So I’m out of pocket for the test & blood draw. Something I can’t particularly afford but I am desperate for answers as my health is getting worse.

    Disgraceful and I’m so fed up! #LongCovid #MECFS #PostVac

     
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  14. Mij

    Mij Senior Member (Voting Rights)

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    I came across this Chronic COVID treatment center run by Dr. Bruce Patterson. A Canadian women paid $2000 for a "Covid Long Hauler Panel" and had a "COVID 19 S1 Protein Immune Subset Panel" done from this treatment center and posted her results on X. She was prescribed Maraviroc
    LINK
     
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  15. Mij

    Mij Senior Member (Voting Rights)

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  16. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    I doubt these results mean anything at all.

    I like the comment 'particularly CD4 and CD8 T cells'. That is a bit like saying something affects 'particularly men and women'.
     
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  17. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

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    Where double-negatives are non-binary? ;)
     
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  18. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Or just celibate, so they don't get exhausted.:(
     

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