Frontiers in Pediatrics is publishing a special issue on ME/CFS. The articles in this issue are being published one at a time as they become available and the full issue will be made available in print when all the articles are finally published. I understand there will be 20 or so articles. Currently, there are 12. The list of articles in this issue can be found here: https://www.frontiersin.org/research-topics/7718/advances-in-mecfs-research-and-clinical-care The individual articles are being discussed in separate threads but I thought if might be helpful to highlight that these are part of a special issue.
Here's the current list of articles - hopefully I have not screwed up the copy paste 1. Estimating Prevalence, Demographics, and Costs of ME/CFS Using Large Scale Medical Claims Data and Machine Learning Ashley R. Valdez , Elizabeth E. Hancock , Seyi Adebayo, David J. Kiernicki, Daniel Proskauer , John R. Attewell , Lucinda Bateman , Alfred DeMaria , Charles W. Lapp, Peter C. Rowe and Charmian Proskauer Original ResearchTechniques of data mining and machine learning were applied to a large database of medical and facility claims from commercially insured patients to determine the prevalence, gender demographics, and costs for individuals with provider-assigned ... Published on 08 January 2019 Front. Pediatr. doi: 10.3389/fped.2018.00412 Thread here ================================================= 2. The Importance of Accurate Diagnosis of ME/CFS in Children and Adolescents: A Commentary Keith James Geraghty and CHARLES ADENIJI PerspectiveMyalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a chronic illness that causes a range of debilitating symptoms. While most research has focused on adults, the illness also presents in children and adolescents. Many physicians find it ... Accepted on 31 December 2018 Front. Pediatr. doi: 10.3389/fped.2018.00435 Thread here ================================================= 3. Initiating Care Of A Patient With Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) Charles Warren Lapp Perspective This paper introduces the primary care physician to the unique and challenging aspects of initially diagnosing and managing a complex condition for which there a plethora of symptoms, few physical findings, no known cause, and no specific treatments. ... Accepted on 13 December 2018 Front. Pediatr. doi: 10.3389/fped.2018.00415 Thread here ================================================= 4. Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in the Era of the Human Microbiome: Persistent Pathogens Drive Chronic Symptoms by Interfering With Host Metabolism, Gene Expression, and Immunity Amy Proal and Trevor Marshall ReviewThe illness ME/CFS has been repeatedly tied to infectious agents such as Epstein Barr Virus. Expanding research on the human microbiome now allows ME/CFS-associated pathogens to be studied as interacting members of human microbiome communities. ... Published on 04 December 2018 Front. Pediatr. doi: 10.3389/fped.2018.00373 Thread here ================================================= 5. The UK ME/CFS Biobank: A Disease-Specific Biobank for Advancing Clinical Research Into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Eliana M. Lacerda , Kathleen Mudie ,Caroline C. Kingdon , Jack D. Butterworth ,Shennae O'Boyle and Luis Nacul PerspectiveMyalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a disabling disease characterized by unexplained incapacitating fatigue, accompanied by variable multi-systemic symptoms. ME/CFS causes a significant personal and public health burden, ... Published on 04 December 2018 Front. Neurol. doi: 10.3389/fneur.2018.01026 Thread here ================================================= 6. Hand Grip Strength as a Clinical Biomarker for ME/CFS and Disease Severity Luis Carlos Nacul , Kathleen Mudie ,Caroline C. Kingdon , Taane G. Clark andEliana Mattos Lacerda Original Research Background The diagnosis of myalgic encephalomyelitis (ME/CFS) in research and clinical practice has largely relied on clinical history, which can be subjective in nature. Clinical signs are often subtle, overlap with other conditions, and are not ... Published on 27 November 2018 Front. Neurol. doi: 10.3389/fneur.2018.00992 Thread here ================================================= 7. Neuroinflammation and cytokines in myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS): A critical review of research methods Michael B VanElzakker , Sydney A Brumfield and Paula S Lara Mejia Review Myalgic encephalomyelitis/ chronic fatigue syndrome (ME/CFS) is the label given to a syndrome that can include long-term flu-like symptoms, profound fatigue, trouble concentrating, and autonomic problems, all of which worsen after exertion. It is ... Accepted on 16 November 2018 Front. Neurol. doi: 10.3389/fneur.2018.01033 Thread here ================================================= 8. Low Sensitivity of Abbreviated Tilt Table Testing for Diagnosing Postural Tachycardia Syndrome in Adults With ME/CFS C. (Linda) M. C. van Campen , Peter C. Rowe and Frans C. Visser Original ResearchIntroduction: Orthostatic intolerance is common among individuals with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). In some ME/CFS case definitions, orthostatic intolerance is considered a core feature of the disorder. Some studies ... Published on 16 November 2018 Front. Pediatr. doi: 10.3389/fped.2018.00349 Thread here ================================================= 9. Blood Volume Status in ME/CFS Correlates With the Presence or Absence of Orthostatic Symptoms: Preliminary Results C. (Linda) M. C. van Campen , Peter C. Rowe and Frans C. Visser Brief Research ReportIntroduction: Conflicting data have been published on the reduction of circulating blood volume in adults with Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The aim of the present study was to compare blood volumes based on the ... Published on 15 November 2018 Front. Pediatr. doi: 10.3389/fped.2018.00352 Thread here ================================================= 10. The Development of the DePaul Symptom Questionnaire: Original, Expanded, Brief, and Pediatric Versions Leonard A. Jason and Madison Sunnquist PerspectiveOne of the key requirements of a reliable case definition is the use of standardized procedures for assessing symptoms. This article chronicles the development of the DePaul Symptom Questionnaire (DSQ) to assess symptoms of the major chronic fatigue ... Published on 06 November 2018 Front. Pediatr. doi: 10.3389/fped.2018.00330 Thread here ================================================= 11. School Functioning in Adolescents With Chronic Fatigue Syndrome Sarah Jenette Knight , Jennifer Politis, Christine Garnham, Adam Scheinberg andMichelle Anne Tollit Original ResearchBackground: It is well known that adolescents with chronic fatigue syndrome (CFS) experience greater school absenteeism compared to healthy adolescents. Less is known about other important aspects of school functioning including school participation, ... Published on 16 October 2018 Front. Pediatr. doi: 10.3389/fped.2018.00302 Thread here ================================================= 12. Cardiopulmonary Exercise Test Methodology for Assessing Exertion Intolerance in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Staci Stevens, Chris Snell, Jared Stevens, Betsy Keller and J. Mark VanNess MethodsBackground: Concise methodological directions for administration of serial cardiopulmonary exercise testing (CPET) for is needed for testing of patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Maximal CPET is used to ... Published on 04 September 2018 Front. Pediatr. doi: 10.3389/fped.2018.00242 Thread here =================================================
@Trish - If you have time, that would be fantastic. I was hoping to get to it later but not sure when Thank you!!
Thank you, @Trish I added a delimiter to make it easier to see the separate articles and links to the threads
From an initial glance this may be a very useful issue to provide to our GP, consultant ( pretty useless) and for advocacy use.
