Thesis Hope for recovery after prolonged and unexplained fatigue, 2024, Andersen (Norwegian)

Dolphin

Dolphin

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https://brage-inn-no.translate.goog...0/3170468?_x_tr_sl=no&_x_tr_tl=en&_x_tr_hl=en

Hope for recovery after prolonged and unexplained fatigue
Andersen, Ann-Hege Dslseng
Master's thesis

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https://hdl.handle.net/11250/3170468
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2024
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Summary
Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME) is a complex and long-term illness of unknown cause. The core symptom is persistent fatigue that is not relieved by rest. Patients with CFS/ME face many challenges and need support, including symptom relief and coping techniques. Although there is no curative treatment, some individuals have experienced improvement.

The purpose of this study is to explore and understand the recovery process in CFS/ME patients by giving them a voice and identifying what they themselves experience as important for recovery. The question being explored is: How is the process experienced by patients with CFS/ME who have experienced recovery, and what do they believe has contributed to recovery?

The study conducted five semi-structured interviews with patients who had experienced improvement with CFS/ME. A qualitative design was chosen. The transcribed interviews were analyzed through systematic text condensation.

The findings show that recovery from CFS/ME is a complex and time-consuming process that requires a holistic approach. Relational support, lifestyle changes, and acceptance contribute to a sense of increased control over everyday life, and a balanced approach to both physical and mental health is essential. The study also shows that patients often experience emotional setbacks, but find strength in maintaining meaningful activities and positive relationships.

The results support recommendations for activity adjustment, cognitive therapy and graded exercise, as well as the need for regular follow-up through conversations and reflection groups. Patients are calling for better expertise in the healthcare system, and increased professional understanding can improve their experience of healthcare services.

Publisher
Inland Norway University

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Håp om bedring etter langvarig og ufroklarlig utmattelse
Andersen, Ann-Hege Dslseng
Master thesis

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https://hdl.handle.net/11250/3170468
Utgivelsesdato
2024
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Sammendrag
Chronic Fatigue Syndrome / Myalgisk Encefalopati (CFS/ME) er en kompleks og langvarig sykdom med ukjent årsak. Kjernesymptomet er vedvarende utmattelse som ikke lindres av hvile. Pasienter med CFS/ME står overfor mange utfordringer og har behov for støtte, inkludert symptomlindring og mestringsteknikker. Selv om det ikke finnes en kurativ behandling, har noen individer opplevd bedring.

Formålet med denne studien er å utforske og forstå bedringsprosessen hos CFS/ME-pasienter ved å gi dem en stemme og identifisere hva de selv opplever som viktig for bedring. Problemstillingen som utforskes er: Hvordan oppleves prosessen til pasienter med CFS/ME som har erfart bedring, og hva mener de har bidratt til bedring?

I studien er det gjennomført fem semi strukturerte intervju av pasienter som har erfart bedring med CFS/ME. Det er valgt kvalitativ design. De transkriberte intervjuene ble analysert gjennom systematisk tekstkondensering.

Funnene viser at bedring fra CFS/ME er en kompleks og tidkrevende prosess som krever en helhetlig tilnærming. Relasjonell støtte, livsstilsendringer og aksept bidrar til en følelse av økt kontroll over hverdagen, og en balansert tilnærming til både fysisk og psykisk helse er avgjørende. Studien viser også at pasientene ofte opplever emosjonelle tilbakeslag, men finner styrke i å opprettholde meningsfulle aktiviteter og positive relasjoner.

Resultatene støtter anbefalinger om aktivitetsjustering, kognitiv terapi og gradert trening, samt behovet for jevnlig oppfølging gjennom samtaler og refleksjonsgrupper. Pasientene etterlyser bedre kompetanse i helsevesenet, og økt faglig forståelse kan forbedre deres opplevelse av helsetjenestene.

Utgiver
Inland Norway University
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On the basis of what is quoted I would rephrase

The findings indicate that recovery from CFS/ME is a complex and time-consuming process requiring a holistic approach. Relational support, lifestyle changes, and acceptance contribute to a sense of greater control over daily life, and a balanced approach to both physical and mental health is essential. The study also shows that patients often experience emotional setbacks but find strength in maintaining meaningful activities and positive relationships.
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as, ‘the findings show whatever I want them to show’.
 
This is a Masters of Mental Health Care student thesis.

It saddens me that students on such courses are clearly not taught about interpreting evidence properly, and not stating conclusions on efficacy of treatments based on 5 anecdotes.

Dolphin said:
The core symptom is persistent fatigue that is not relieved by rest.
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Nope.

Dolphin said:
The question being explored is: How is the process experienced by patients with CFS/ME who have experienced recovery, and what do they believe has contributed to recovery?
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So they are researching 5 patients' beliefs, not clnical trial evidence

Dolphin said:
The findings show that recovery from CFS/ME is a complex and time-consuming process that requires a holistic approach. Relational support, lifestyle changes, and acceptance contribute to a sense of increased control over everyday life, and a balanced approach to both physical and mental health is essential. The study also shows that patients often experience emotional setbacks, but find strength in maintaining meaningful activities and positive relationships.
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Nope. It shows only what 5 patients with some sort of fatigue problem say they experienced. Nothing more.

Dolphin said:
The results support recommendations for activity adjustment, cognitive therapy and graded exercise, as well as the need for regular follow-up through conversations and reflection groups. P
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Nope.

Dolphin said:
The results support recommendations for activity adjustment, cognitive therapy, and graded exercise, as well as the need for regular follow-up through individual conversations and reflection groups.
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Nope.
 
There is a place for such … (sorry word finding problems, perhaps I mean qualitative) … research, but this data has been tortured beyond any meaningful scientific validity to say what the student (and/or her supervisor) want it to say.

I could not see the name of the supervisor, but I wonder if they are part the ideological grouping in Norway linked to LP and promoting the concept of recovery from ME/CFS even though such recovered patients are very much a minority. Perhaps she could go on to interview people over six feet tall to establish how we can all grow taller.
 
Jonathan Edwards said:
It is interesting to see openly displayed just how incompetent teaching of mental health is.

How can people like Peter Denton White and Michael Sharpe expect to be taken seriously if this is the reality of mental health training?
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Unfortunately, because they are selling something that people in economic and political power really really want – pseudo-scientific excuses for shitty medical and public policy – they are being taken very seriously, and I don't expect that to change any time soon.
 
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