Thesis Hope for recovery after prolonged and unexplained fatigue, 2024, Andersen (Norwegian)

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Dolphin, Dec 27, 2024.

  1. Dolphin

    Dolphin Senior Member (Voting Rights)

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    https://brage-inn-no.translate.goog...0/3170468?_x_tr_sl=no&_x_tr_tl=en&_x_tr_hl=en

    Summary
    Chronic Fatigue Syndrome/Myalgic Encephalopathy (CFS/ME) is a complex and long-term illness of unknown cause. The core symptom is persistent fatigue that is not relieved by rest. Patients with CFS/ME face many challenges and need support, including symptom relief and coping techniques. Although there is no curative treatment, some individuals have experienced improvement.

    The purpose of this study is to explore and understand the recovery process in CFS/ME patients by giving them a voice and identifying what they themselves experience as important for recovery. The question being explored is: How is the process experienced by patients with CFS/ME who have experienced recovery, and what do they believe has contributed to recovery?

    The study conducted five semi-structured interviews with patients who had experienced improvement with CFS/ME. A qualitative design was chosen. The transcribed interviews were analyzed through systematic text condensation.

    The findings show that recovery from CFS/ME is a complex and time-consuming process that requires a holistic approach. Relational support, lifestyle changes, and acceptance contribute to a sense of increased control over everyday life, and a balanced approach to both physical and mental health is essential. The study also shows that patients often experience emotional setbacks, but find strength in maintaining meaningful activities and positive relationships.

    The results support recommendations for activity adjustment, cognitive therapy and graded exercise, as well as the need for regular follow-up through conversations and reflection groups. Patients are calling for better expertise in the healthcare system, and increased professional understanding can improve their experience of healthcare services.

    Publisher
    Inland Norway University

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    Last edited by a moderator: Dec 27, 2024
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  2. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    On the basis of what is quoted I would rephrase

    as, ‘the findings show whatever I want them to show’.
     
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  3. Trish

    Trish Moderator Staff Member

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    This is a Masters of Mental Health Care student thesis.

    It saddens me that students on such courses are clearly not taught about interpreting evidence properly, and not stating conclusions on efficacy of treatments based on 5 anecdotes.

    Nope.

    So they are researching 5 patients' beliefs, not clnical trial evidence

    Nope. It shows only what 5 patients with some sort of fatigue problem say they experienced. Nothing more.

    Nope.

    Nope.
     
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  4. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    It is interesting to see openly displayed just how incompetent teaching of mental health is.

    How can people like Peter Denton White and Michael Sharpe expect to be taken seriously if this is the reality of mental health training?
     
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  5. Nightsong

    Nightsong Senior Member (Voting Rights)

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    Am I the only one who finds the idea that patients have to be given a voice to be objectionable?
     
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  6. Trish

    Trish Moderator Staff Member

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    Especially as they are not really giving them a voice, they are giving them a chance to talk to a student who then messes about with what they say and muddles it in with other voices and draws erroneous conclusions.

    No thanks!
     
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  7. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    There is a place for such … (sorry word finding problems, perhaps I mean qualitative) … research, but this data has been tortured beyond any meaningful scientific validity to say what the student (and/or her supervisor) want it to say.

    I could not see the name of the supervisor, but I wonder if they are part the ideological grouping in Norway linked to LP and promoting the concept of recovery from ME/CFS even though such recovered patients are very much a minority. Perhaps she could go on to interview people over six feet tall to establish how we can all grow taller.
     
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  8. Sean

    Sean Moderator Staff Member

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    Unfortunately, because they are selling something that people in economic and political power really really want – pseudo-scientific excuses for shitty medical and public policy – they are being taken very seriously, and I don't expect that to change any time soon.
     
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