Dolphin
Senior Member (Voting Rights)
Hospital Care Plan for Severe-Very Severe ME/CFS and long COVID (and associated conditions, e.g.: dysautonomia)
Hospital Care Plan for Severe-Very Severe ME/CFS and long COVID (and associated conditions, e.g.: dysautonomia) (ME Respite & ANZMES)
- Thread starter Dolphin
- Start date
Utsikt
Senior Member (Voting Rights)
Briefly skimming it, I noticed a lot of unfounded statements about pathology and comorbidities. There’s talk of how ME/CFS might present with 100-200 symptoms and is highly individual.
It also seems like it might be too long and some of the headings are misleading. The section about low-stimuli environment and limiting interactions etc. is named «Creating an Environment for Validation and Empathy».
There are useful bits that can be reused in a revised version.
It also seems like it might be too long and some of the headings are misleading. The section about low-stimuli environment and limiting interactions etc. is named «Creating an Environment for Validation and Empathy».
There are useful bits that can be reused in a revised version.
Jonathan Edwards
Senior Member (Voting Rights)
I am unclear on a brief skimming who this is intended for. It seems to try to put too much in to one document - with different material potentially being aimed at different people. There is a lot of unnecessary material about speculated pathologies and problems. As it is I think it will put health professionals off quite quickly and they will ignore it. That would be a pity because there are a lot of elements that are relevant to simple practical matters.