Illness-Promoting Psychological Processes in Children and Adolescents with Functional Neurological Disorder 2023 Kozlowska et al

Discussion in 'Other psychosomatic news and research' started by Andy, Nov 26, 2023.

  1. Andy

    Andy Committee Member

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    Abstract

    Previous studies suggest that subjective distress in children with functional neurological disorder (FND) is associated with stress-system dysregulation and modulates aberrant changes in neural networks. The current study documents illness-promoting psychological processes in 76 children with FND (60 girls and 16 boys, aged 10.00−17.08 years) admitted to the Mind–Body Program. The children completed a comprehensive family assessment and self-report measures, and they worked with the clinical team to identify psychological processes during their inpatient admission. A total of 47 healthy controls (35 girls and 12 boys, aged 8.58–17.92 years) also completed self-report measures, but were not assessed for illness-promoting psychological processes.

    Children with FND (vs. controls) reported higher levels of subjective distress (total DASS score, t(104.24) = 12.18; p ˂ 0.001) and more adverse childhood experiences across their lifespans (total ELSQ score, t(88.57) = 9.38; p ˂ 0.001). Illness-promoting psychological processes were identified in all children with FND. Most common were the following: chronic worries about schoolwork, friendships, or parental wellbeing (n = 64; 84.2%); attention to symptoms (n = 61; 80.3%); feeling sad (n = 58; 76.3%); experiencing a low sense of control (helplessness) in relation to symptoms (n = 44; 57.9%); pushing difficult thoughts out of mind (n = 44; 57.9%); self-critical rumination (n = 42; 55.3%); negative/catastrophic-symptom expectations (n = 40; 52.6%); avoidance of activities (n = 38; 50%); intrusive thoughts/feelings/memories associated with adverse events (n = 38, 50%); and pushing difficult feelings out of mind (n = 37; 48.7%). In children with FND—disabled enough to be admitted for inpatient treatment—illness-promoting psychological processes are part of the clinical presentation. They contribute to the child’s ongoing sense of subjective distress, and if not addressed can maintain the illness process. A range of clinical interventions used to address illness-promoting psychological processes are discussed, along with illustrative vignettes.

    Open access, https://www.mdpi.com/2227-9067/10/11/1724
     
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  2. Andy

    Andy Committee Member

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    "5. Centrally Important Interventions: Used with All Children and Their Families

    5.1. Setting Up Positive Expectations
    In the results section, we saw that illness-promoting cognitive processes and negative expectations pertaining to FND symptoms are common in children with FND. “Expectations shape—at least in part—the manner in which the brain processes a broad range of sensory, motor, interoceptive, and emotion-related information” (p. 86) [20]. The child’s expectations will thus be reflected in her body, thoughts, and feelings and can potentially, through a range of mind–brain–body pathways, affect the course of her symptoms [24,25,27,38,39]. Likewise, expectations that a child (and the family) hold toward treatment are a powerful contributor to the treatment process and to clinical outcomes [81]. In our interactions with the child and family—from the very first contact—we work to shape positive expectations with regard to the treatment process and the likelihood of good treatment outcomes. This process of setting up positive expectations needs to be embedded in the therapeutic relationship and will depend on the clinician’s capacity to connect with the child and family to create mutual trust and acceptance."

    ...

    "Vignette: Meera (use of positive suggestion through hypnosis)

    Meera was a 17-year-old adolescent with FND—paralysis of her legs and in one arm, with comorbid postural orthostatic tachycardia syndrome, fatigue, and social anxiety—that had not improved with treatment and that left her wheelchair-bound. On presentation Meera was hopeless and was clear that she did not expect anything to work. She did not expect to get better. To shift these expectations the therapist provided psychoeducation about the treatment outcomes for FND: she made explicit positive predictions about Meera’s likelihood of recovery. The therapists then focused on and amplified small gains that Meera was making, thereby redirecting Meera’s attention away from her perceived failures. The therapist then used hypnosis designed to build positive expectancies for the future (adapted from a Michael Yapko protocol for patients with depression). The work emphasized the idea that past (negative) experiences do not predict the future. Meera’s sense of agency and hope increased as she built the links between her actions today and her future outcome. The therapist used a mixture of general suggestions (e.g., “Every choice you make today will help to contribute to what tomorrow is like for you.”) and concrete suggestions (e.g., “Every time you choose to do your physio exercises you are helping yourself get better and better.”)."
     
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  3. Hutan

    Hutan Moderator Staff Member

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    Utterly horrifying.

    Kasia Kozlowska 1,2,3,* , Olivia Schollar-Root 1, Blanche Savage 1,4, Clare Hawkes 1, Catherine Chudleigh 1,4, Jyoti Raghunandan 1, Stephen Scher 5,6 and Helene Helgeland 7

    1. Department of Psychological Medicine, The Children’s Hospital at Westmead, Westmead, NSW 2145, Australia
    2. Child and Adolescent Heath and Specialty of Psychiatry, Faculty of Medicine and Health, University of Sydney, Camperdown, NSW 2050, Australia
    3. Brain Dynamics Centre, Westmead Institute of Medical Research, Faculty of Medicine and Health, University of Sydney, Westmead, NSW 2145, Australia
    4. Golden Wattle Clinical Psychology, 20 Jarrett St, Leichhardt, NSW 2040, Australia
    5. Department of Psychiatry, McLean Hospital, Harvard Medical School, Boston, MA 02115, USA
    6. Specialty of Psychiatry, Faculty of Medicine and Health, University of Sydney, Camperdown, NSW 2050, Australia
    7. Department of Child and Adolescent Mental Health in Hospitals, Oslo University Hospital, 0424 Oslo, Norway

    Yet again, FND proponents show that they cannot grasp the difference between correlation and causation, this time while messing around with the minds of vulnerable young people and their families.

    I suspect a sample of young people with any seriously life-limiting chronic disease would report similar percentages. But of course this study chose a control group of healthy young people rather than those with chronic illnesses, and then they didn't even ask them about these so-called 'illness-promoting psychological processes'.

    It's brilliant, of course. The therapist never fails. If the young person recovers, it is thanks to the therapist. If the young person does not recover, they didn't want to be well enough, or couldn't trust the therapist enough, or something.


    Woo upon woo. There was that paper that found that hypnosis doesn't even work for getting people to stop smoking.
     
    Last edited: Nov 26, 2023
  4. rvallee

    rvallee Senior Member (Voting Rights)

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    You just can tell that they're witches by the way they were dunked in water
     
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  5. rvallee

    rvallee Senior Member (Voting Rights)

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    Could just as easily be replaced with:
    Actually, this one works even better given, you know, ugh:
    The whole thing is completely back-asswards. These people are not serious.
     
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  6. dave30th

    dave30th Senior Member (Voting Rights)

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    I thought pushing difficult thoughts and feelings out of your mind was supposed to be a positive thing in the context of "functional" illnesses, since negative thoughts/feelings are considered to reinforce the catastrophic thinking. But here they consider pushing negative thoughts/feelings away to be illness-promoting. Of course they have no evidence that these are "illness-promoting" rather than "generated by illness." It's all nonsense.
     
  7. rvallee

    rvallee Senior Member (Voting Rights)

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    Heads they win. Tails they win. No tossing they also win.
     
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  8. Sean

    Sean Moderator Staff Member

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    Unfortunately, they are.
    A predictable, and long predicted, consequence of removing falsification and adequate control from the methodological checklist. Open ended, untestable, blatantly inconsistent speculation becomes de rigeur, and nobody (or at least nobody who matters) in the quality control process (peer review) bats an eyelid at it. Indeed, some even start actively defending it.
     
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