Intensive Pain/Exercise Programs Are Not Beneficial For Most Pots Patients, 2024, Pederson & Wilson

Authors: Cathy L. Pederson, Rachel E. Wilson

Abstract
Intensive, hospital-based rehabilitation programs are recommended for many POTS patients.

Electronic surveys were taken by 1,130 POTS patients to assess the long-term effects of these programs, including a demographic questionnaire, the Malmö POTS Symptom Score (MAPS), Functional Assessment of Chronic Illness Therapy Fatigue Scale (FACIT), Gastrointestinal Symptom Rating Scale (GSRS), and Self-Management Assessment Scale (SMAS).

Only 80 (54.1%) POTS patients completed an entire rehabilitation program while 68 (45.9%) left early.

One-way ANOVAs revealed that POTS patients who began a rehabilitation program had significantly more diagnoses (p < 0.001), higher incidence of CFS/ME (p = 0.026), EDS (p = 0.002), MCAS (p < 0.001), and disability (p = 0.049), and higher scores on the MAPS (p = 0.043), GSRS (p = 0.039), and SMAS Knowledge (p < 0.001), Goals for Future (p = 0.002) and Daily Routines (p = 0.016) than those who never started.

Participants who left rehabilitation early had a significantly higher incidence of disability (p = 0.026) and scored significantly lower on SMAS Daily Routines (p = 0.004) and Emotional Adjustment (p = 0.001) domains than those who completed the program.

A significantly lower incidence of EDS (p = 0.005) was found in the 46.2% of participants that felt better after rehabilitation than those who stayed the same or felt worse. The remaining 53.8% of enrollees reported no benefit from these programs, with those who felt worse after starting rehabilitation having a significantly higher incidence of MCAS than those who stayed the same (p = 0.043).

Keywords: Postural orthostatic tachycardia syndrome (POTS), rehabilitation, pain program, exercise program

Article Citation: Cathy L. Pederson, Rachel E. Wilson, (2024 ) "Intensive Pain/Exercise Programs Are Not Beneficial For Most Pots Patients", International Journal of Management and Applied Science (IJMAS), pp. 67-73, Volume-10, Issue-3

https://ijmas.iraj.in/paper_detail....ams_Are_Not_Beneficial_For_Most_Pots_Patients

 

Dr Cathy Pederson is the founder of https://www.standinguptopots.org/

 

sounds disgusting and controlling brainwashing parents and children into dismissing symptoms pure quackery why do tax payers have to pay for this.

 

Use a reward system. Consider using a visual means to see how much you exercise over time. Put a bead, marble or penny in a cup for every five minutes you exercise. It is encouraging to see them build up over time. For kids, these beads can be traded in for video games, articles of clothing, or whatever reward they want. They love it!

Why does this make me think of dog training with treats? Is a clicker required too?

 

Like only giving your child dessert if they eat the dinner laced with salmonella first to build up their immune system.

 

They love it! Except when it becomes painfully obvious that they don't progress, in fact sometimes regress, and are then blamed for it.

Gamifying things is good for motivation, but the people who study motivation for a living cannot identify a problem of motivation, and so apply the wrong solution to a completely different problem precisely because they understand nothing of it. The fact that they obviously can never tell the difference doesn't seem to bother them one bit, they apply the mindless "can't hurt" dogma, even though it clearly does.

"Exorcists" also believed that they were successfully chasing away demons, people will believe in anything to justify that what they are doing is good. Professionals are never immune to this, and the 1:1 format and excessive secrecy model of health care makes it even more problematic, even worse with the lack of proper independent recording of what actually happened.

Earlier this year I started being able to do more, exercise a bit. At first I improved, then stalled, then got worse. It's all written down, with visual means and all. Not encouraging at all. In fact very discouraging. I do not love it one bit.

 

Weird isn’t it.

I trained as a runner many years ago before I got ill. No one used beads or nonsense. It was pre mobiles so we wrote our times in a book every session. And plotted them as a graph

so it’s nonsense that these people don’t do this but instead get them to plot what they did. No trainer would do that. Only someone who doesn’t care about the outcome of fitness or health just their own what they get paid for.

and if someone’s times got worse (with more) they’d have been looking at reducing not ‘motivating’ because even in healthy people there was over training etc.

 

Dr Cathy Pedersen talks about this study on the latest episode of the podcast The POTScast.

E215:Intensive Pain/Exercise Programs for POTS with Dr. Cathy Pederson
https://www.standinguptopots.org/podcast