Posted under Germany, but giving it its own thread https://events.mecfs-research.org/en/events/conference_2025 Agenda https://events.mecfs-research.org/en/events/conference_2025/agenda Features everybody’s favorite serious hard-core ME/CFS researcher David P*trino. 12.05.2025 - Monday (Day 1) Introduction Chairs Carmen Scheibenbogen, Charité - University Medicine Berlin, Germany David Putrino, Icahn School of Medicine at Mount Sinai, New York, USA 10:00 5 min Welcome Carmen Scheibenbogen, Charité - University Medicine Berlin, Germany 10:05 20 min The pandemic: What have we learned about post-acute infection syndromes (PAIS)? David Putrino, Icahn School of Medicine at Mount Sinai, New York, USA 10:25 20 min The pandemic and ME/CFS: What have we learned? Where have we made progress? Carmen Scheibenbogen, Charité - University Medicine Berlin, Germany Care for ME/CFS Chairs Uta Behrends, Technical University of Munich (TUM) Hospital and Munich Schwabing Clinic, Germany Kristian Sommerfelt, University of Bergen, Norway 10:45 15 min PEDNET-LC: A pediatric network for healthcare and research on PCS, similar PAIS, Post-VAC, and ME/CFS Uta Behrends, Technical University of Munich (TUM) Hospital and Munich Schwabing Clinic, Germany 11:00 15 min The Austrian National Reference Center for Postviral Syndromes Kathryn Hoffmann, Medical University of Vienna, Austria 11:15 15 min The Akureyri Clinic: A national ME/CFS clinic Fridbjörn Sigurdsson, Landspitali - University Hospital, Reykjavik, Iceland 11:30 15 min CFS_CARE: Charité health care and rehabilitation study for ME/CFS Claudia Kedor, Charité - University Medicine Berlin, Germany 11:45 15 min Clinical care for ME/CFS Michael Stingl, Dr. Michael Stingl Private Practice, Austria 12:00 15 min Off-label drugs for ME/CFS and PCS in Germany Bernhard Wörmann, Charité - University Medicine Berlin, Germany 12:15 15 min The situation of very severely ill ME/CFS patients Kristian Sommerfelt, University of Bergen, Norway Posters Chairs Martina Seifert, Charité - University Medicine Berlin, Germany Wolfram Döhner, Charité - University Medicine Berlin, Germany 12:30 30 min Selected poster presentations (5x5 min) 13:00 75 min Posters & Exchange & Lunch Understanding I: Cardiovascular dysregulation and mitochondrial pathology Chairs Klaus Wirth, Mitodicure GmbH, Germany David Systrom, Brigham and Women's Hospital and Harvard Medical School, Boston, USA 14:15 15 min Circulatory dysfunction in ME/CFS David Systrom, Brigham and Women's Hospital and Harvard Medical School, Boston, USA 14:30 15 min Skeletal muscle alterations in PCS and ME/CFS Rob Wust, Vrije Universiteit (VU) Amsterdam, Netherlands 14:45 15 min Muscle mitochondria in ME/CFS and PCS Jürgen Steinacker, University Clinic Ulm, Germany 15:00 15 min Mechanisms of Post-Exertional Malaise (PEM) Christian Puta, University of Jena, Germany 15:15 15 min Metabolomics and cellular energy supply in ME/CFS Karl Johan Tronstad, University of Bergen, Norway 15:30 45 min Posters & Coffee Understanding II: Immune dysregulation and autoimmunity Chairs Gabriela Riemekasten, University of Lübeck, Germany Yehuda Shoenfeld, Tel Aviv University, Israel 16:15 20 min Transfer of IgG from PCS patients induces symptomology in mice Jeroen den Dunnen, Amsterdam University Medical Center (UMC), Netherlands 16:35 20 min GPCR autoantibodies in ME/CFS and brain alterations Takashi Yamamura, National Center of Neurology and Psychiatry (NCNP), Tokyo, Japan 16:55 15 min Autoantibodies mimicking EBV sequences in ME/CFS and PCS Franziska Sotzny, Charité - University Medicine Berlin, Germany 17:10 15 min Autoantibodies to neuronal antigens in ME/CFS and PCS Christiana Franke, Charité - University Medicine Berlin, Germany 17:25 15 min Autoreactive B cells in ME/CFS Birgit Sawitzki, Charité - University Medicine Berlin, Germany 17:40 15 min Transcriptome analysis identifies immune dysregulation in peripheral immune cells of ME/CFS patients Anna Aschenbrenner, German Center for Neurodegenerative Diseases (DZNE), Bonn, Germany 13.05.2025 - Tuesday (Day 2) Treatment I: Clinical trials targeting autoantibodies Chairs Nina Babel, Charité - University Medicine Berlin, Germany Yehuda Shoenfeld, Tel Aviv University, Israel 9:00 20 min More than 10 years of experience in autoantibody targeting in ME/CFS Olav Mella, University of Bergen, Norway 9:20 20 min Plasma cell targeting in ME/CFS Øystein Fluge, University of Bergen, Norway 9:40 10 min B cell depletion targeting CD19 trial in ME/CFS and PCS Judith Bellmann-Strobl, Charité - University Medicine Berlin, Germany 9:50 10 min Rituximab trial in ME/CFS Wakiro Sato, National Center of Neurology and Psychiatry (NCNP), Tokyo, Japan 10:00 10 min Immunoadsorption trial in ME/CFS Elisa Stein, Charité - University Medicine Berlin, Germany 10:10 10 min Immunoadsorption in severely ill ME/CFS Georg Schlieper, Dialysis Hannover - Center for Kidney, Hypertension and Metabolic Diseases, Germany 10:20 30 min Coffee Break Treatment II: Clinical trials Chairs Christiana Franke, Charité - University Medicine Berlin, Germany Jürgen Steinacker, University Clinic Ulm, Germany 11:00 20 min Overview of IgG therapy in ME/CFS and PCS Nina Babel, Charité - University Medicine Berlin, Germany 11:20 20 min Hyperbaric oxygen therapy (HBOT) trial in ME/CFS Laura Kim, Charité - University Medicine Berlin, Germany 11:40 10 min Low-dose Naltrexone (LDN) and Mestinon trial in ME/CFS David Systrom, Brigham and Women's Hospital and Harvard Medical School, Boston, USA 11:50 10 min Low-dose Rapamycin trial in PCS David Putrino, Icahn School of Medicine at Mount Sinai, New York, USA 12:00 20 min Targeting muscle and mitochondrial dysfunction in ME/CFS Klaus Wirth, Mitodicure GmbH, Germany 12:20 20 min Targeting viral persistence in PCS Michael Peluso, University of California San Francisco (UCSF), USA 12:45 Poster award & Lunch & Adjourn
