MECFSnet website now live

[John Mac]

MECFSnet, the website of the ME/CFS Collaborative Research Centers and the Data Management Coordinating Center, is now live.

https://mecfs.rti.org/

 

[inox]

ME/CFS Can Affect Anyone

Millions of people worldwide are affected by Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Yet the causes, diagnostic markers, progression, and FDA-approved treatments remain unknown. The ME/CFS Collaborative Research Network (ME/CFSnet) encourages collaborative research in partnership with individuals and advocacy groups to create a shared vision for better diagnosis and treatment.​

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[Andy]

They have a page, https://mecfs.rti.org/get-involved/, with the parts of the studies at all centers that are open for recruitment. I've either updated or created new threads for these in our recruitment sub-forum, https://s4me.info/forums/recruitment-into-current-me-cfs-research-studies.129/

 

[rvallee]

ME/CFS Can Affect Anyone

That is the right message. If people understood that they basically have a 1% risk of losing everything and there is nothing they can do about it except ending the denial and systemic discrimination, much more would be done. People pay significant sums to insure themselves against much less serious and less likely threats, like losing your house to fire.