Protocol Mind-Body in Long COVID and Myalgic Encephalomyelitis Study (MILES): A Patient-Centred RCT (MILES RCT)

This will be conducted by the University of Alabama, which is where Jarred Younger is based, although no individual is listed at the link above.

Edit to add: No, I was wrong, Trish points out below that it is the University of Alberta, not Alabama.

 

I wonder what a treatment as usual wait list control actually means?
What are they waiting for? What treatment would be usual?
The blurb makes it sound as if the investigators think 'MBI' is plausible. That is likely to have the usual downsides in terms of trial design. At least it sounds as if actimetry is included. But without any sham treatment or other motivational treatment group it will be quite difficult to interpret an increased step count.

 

DNRS is the Dynamic Neural Retraining System, created by someone named Annie Hopper. It has the same kinds of components as many of the others, as far as I know--positive affirmations, breathing/relaxation exercises, visualizations, etc. It's good they're including some objective outcomes.

 

HRQL will be highly influenced by bias and the follow up is way too short. This is not a robust trial at all.

 

Thanks, that shows I shouldn't post anything before my brain wakes up properly.

 

The website has a list of success stories and endorsements by professors and practitioners:
https://retrainingthebrain.com/

The program costs $350 for one year of access and you can buy additional coaching. It’s $20/month after one year to keep access.

They also have a Global Community Forum for everyone that has purchased the program.

 

The keep citing a «study» from 2016 that is an «unpublished manuscript» where they claim that they found drastic improvements:

“Neuroplasticity-based treatment for fibromyalgia, chronic fatigue and multiple chemical sensitivity: feasibility and outcomes” Guenter D, et al. (2019)

https://retrainingthebrain.com/the-science-behind-dnrs/ongoing-research/

 

One of the objective measurements:

If it’s untargeted, can they just chose to include only the metabolic changes that correlated with their no doubt positive subjective findings?

 

https://cpsa.ca/about-cpsa/awards-recognition/cpsa-healthier-albertan-grant/

 

Amount awarded: Medium

Medium Grant – $100,001 – $1,000,000

 

What a complete waste of money!

 

Why would someone need to keep paying a prescription if their brain has been 'retrained'? I guess it's so "plastic" that it has to be constantly remolded in The Right WayTM.

This is a business model seeking to build supporting evidence.

The harsh truth about this pseudoscience is that if promoters truly believed in it, they would use rigorous trials, run by skeptics. But of course that's bad for business, so they never do that. Uri Geller never made the mistake of not using his own spoons after that infamous incident on Jonny Carson, even though it did nothing to harm his reputation.

The "drink my own pee" industry really needs to learn from them.

 

Similarly, these type of approaches never try to explain relapsing and remitting courses of ME/CFS.

 

It might be the one I wrote about a few years ago in this post on DNRS. In that case, it was Canada, but McMasters University.

 

With the LP, at least, wouldn't any fluctuations happen because you stopped doing the LP and saying "STOP!" effectively and properly, and instead began "doing" ME again?

 

Your posts are a gold mine!

The video has been set to private. So I’m glad you wrote about the results. Can I copy them to this thread?