Move clinical trial data sharing from an option to an imperative

https://www.statnews.com/2019/02/19/data-sharing-imperative-clinical-trials/

 

I thought 'deidentified raw data' was a myth promoted by naive anti-science patients?

 

And fortunately we have the trial meeting group notes where the PACE team agree on the steps they need to take (and will take) to prepare the data so it's ready to go whenever they are dragged kicking and screaming into doing what they have refused to do for years, despite the HRA's pathetic whitewash.

Weird how the nothingness (embarrassing reanalysis aside) that happened when data were partially released, despite apocalyptic warnings from PACE authors, is conveniently ignored when they reiterate the "danger" of releasing data to "borderline psychopaths" (and, I guess, "whiners"). Although, to be fair, the embarrassment was pretty bad for their overhyped claims.

 

not going to be retrospective I guess, or enforceable on those already published.

 

Plans. That means nothing. What about getting concrete?!