Link Interview includes Wes Ely — And so I had to start thinking to myself, “Wes, you need education. You need to learn. And most importantly, you need to listen to these people.” And as a medical insider, we are taught to not diagnose something unless we understand what it is, to not label something unless we understand what it is. And when we don’t understand something, we feel uncomfortable. And that’s the way I felt. I felt like, for example, part of the disease of long Covid has a lot to do with the symptoms of myalgic encephalomyelitis/chronic fatigue syndrome, and that ME/CFS is a disease state that many people don’t believe of in Western medicine. There’s no diagnostic test, there’s no treatment, isn’t even real, and many doctors label such patients as psychosomatic or having psychological illness and suggest that they go get psychiatric help, and it’s all stress related. So that’s where I was coming from as a physician. Am I willing to lay down my diagnosis and call it a real thing and have other doctors in my circles say, “Wes, are you losing it? Do you actually believe this stuff?,” and in the end of the day, I fell heavily on the side of, “Yes, I believe in this. And call me a quack, but I think we’re going to prove that this is a real disease state, and we’ve got a lot to learn from the patients and about the science.” --- I think we are where we are in terms of the societal unacceptance of long Covid and the medical community’s essential unacceptance of long Covid — broad-sweeping brush strokes here — because this pandemic occurred, it threw us all for such a loop, it scared everybody dramatically, we had millions of deaths, and we all want it to be over. We want to forget about this and move on with our lives. And the last thing we want to hear, as a society, is that there is an infection-associated chronic condition resulting from this virus that doesn’t go away for people years later. But honestly, everybody I’ve asked, “Have you ever heard of long Covid?,” they all say, “Oh, yeah, my cousin has it,” “Oh, yeah, my best friend has it.” Everybody seems to know somebody who has long Covid, and yet the government and medical community is not talking about this very broadly. One of my patients applied four times to Social Security, got rejected every time. She has a medical diagnosis of long Covid. She has all the chart documentation that you could ask for. And yet she can’t get the help that she needs. We’re just way behind on acknowledging the realities of this public health disaster.
