NHS Wales - Primary fatigue service

I've only skimmed through the info on this website.

The only reference to PEM comes a bit later on this page

but the link doesn't appear to work (404).(?)

https://ctmuhb.nhs.wales/services/primary-fatigue-service/fatigue/

 

I'm not sure PEM should be put in the fatigue category no matter how it's worded. But I guess for the time being it's ok?

 

The risk of categorising PEM under fatigue is that it increases the chance of confusing it with increased fatiguability, that is getting fatigued by an activity more rapidly than previously. Increased fatiguability is an apparent exaggeration of the normal process found in many conditions where as PEM is a qualitatively different phenomenon.

 

"The disabling weakness and exhaustion a person with ME/CFS experiences is so profound that "fatigue" is ...probably an insult." -Jane Cuozzo

 

https://www.goodreads.com/author/quotes/18433580.Jane_Cuozzo

 

I got it from Bateman Horn Center:
https://twitter.com/user/status/1719393269413781695

 

I had a lot of fatigue when I was ill with Me/CFS. PEM was moderate for me and lasted a few hours.

 

This page provides a bit more info: https://ctmuhb.nhs.wales/services/primary-fatigue-service/more-about-the-service/

This service is only available to those in the Cwm Taf health board area (Merthyr and S Wales valleys), not all Wales.

Also...

This is what ME Association and other ME charities in Wales have to say about healthcare provision for those with ME and Long Covid (as of March 2023):
https://meassociation.org.uk/2023/03/welsh-long-covid-nhs-services-expanded-for-me-cfs/