NHS website: opportunity to give feedback

[Sly Saint]

Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS)

Read about myalgic encephalomyelitis (chronic fatigue syndrome or ME/CFS). It’s a long-term condition with a wide range of symptoms including extreme tiredness.

www.nhs.uk

I was taking another look at the NHS pages on ME/CFS and it comes up with an option to take a 5minute survey. Obviously this is a general survey but does give you the option to comment on the information currently on the website.
I commented on the diagnosis page

Guidelines for diagnosing ME/CFS​

Guidelines from the National Institute for Health and Care Excellence (NICE) say doctors should consider diagnosing ME/CFS if all the following apply and are not caused by another condition:

• fatigue (extreme tiredness)
• sleep problems
• issues with thinking and concentration
• symptoms are made worse by physical or mental activity

and it also asks about whether you trust information on the NHS website, and if not why not.

The NHS only seem to link to the MEA now for further information.............if only the MEA could 'adopt' the latest S4ME info sheet for professionals and get it on the NHS website............

 

[Tilly]

Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS)

Read about myalgic encephalomyelitis (chronic fatigue syndrome or ME/CFS). It’s a long-term condition with a wide range of symptoms including extreme tiredness.

www.nhs.uk

I was taking another look at the NHS pages on ME/CFS and it comes up with an option to take a 5minute survey. Obviously this is a general survey but does give you the option to comment on the information currently on the website.
I commented on the diagnosis page

and it also asks about whether you trust information on the NHS website, and if not why not.

The NHS only seem to link to the MEA now for further information.............if only the MEA could 'adopt' the latest S4ME info sheet for professionals and get it on the NHS website............

Seems odd that they only have ME, I think this needs to be taken up as an issue?

 

[Amw66]

Myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS)

Read about myalgic encephalomyelitis (chronic fatigue syndrome or ME/CFS). It’s a long-term condition with a wide range of symptoms including extreme tiredness.

www.nhs.uk

I was taking another look at the NHS pages on ME/CFS and it comes up with an option to take a 5minute survey. Obviously this is a general survey but does give you the option to comment on the information currently on the website.
I commented on the diagnosis page

and it also asks about whether you trust information on the NHS website, and if not why not.

The NHS only seem to link to the MEA now for further information.............if only the MEA could 'adopt' the latest S4ME info sheet for professionals and get it on the NHS website............

I can't find the survey - perhaps blocked as I am not England and Wales NHS ?

 

[Sly Saint]

I can't find the survey - perhaps blocked as I am not England and Wales NHS ?

no, the link has gone. Don't know why. Maybe it only comes up randomly?