Please go upvote the questions about ME/CFS so they stay visible: (start with www.) reddit.com/r/science/comments/8dn0jo/im_francis_collins_director_of_the_national/
No news, sadly, but that was predictable. I would have liked to hear about plans to increase funding further. Current funding isn't enough to make a difference fast enough. At least we were represented and acknowledged which is something.
I agree that research has to be done properly, and that we are starting from a very low base. But lack of research funding is a major factor in that low base. Provide the funds, and the researchers will come.