Venicequeenf
Established Member
Renate is fine, no symptoms anymore
Open Norway: Plasma cell aimed treatment with daratumumab in ME/CFS (ResetME) - Haukeland University Hospital
- Thread starter Kalliope
- Start date
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- cd38 daratumumab norway resetme
V.R.T.
Senior Member (Voting Rights)
Do you know this from social media posts? I haven't heard anything since the video that was put out for that fundraiser last year.
Venicequeenf
Established Member
I commented a post on her facebook page and she replied immediately
V.R.T.
Senior Member (Voting Rights)
Oh cool! That's great to hear. Good for her!
Venicequeenf
Established Member
That’s just THE dream. But i want to know how the other 5 are, too
V.R.T.
Senior Member (Voting Rights)
There's one that was retreated with a lower dose recently after partially relapsing and this person improved a bit but it didn't last as long (they think cos of the lower dose).
Iirc I think they're retreating others with the full dose so perhaps they've partially relapsed too.
Venicequeenf
Established Member
Amongst the original 10 participants, did they use different doses?
V.R.T.
Senior Member (Voting Rights)
Im pretty certain it was the same dose for everyone.
Venicequeenf
Established Member
But it was considered lower than what they are planning to use in the new trial, right? Or did i pick up that info incorrectly?
V.R.T.
Senior Member (Voting Rights)
They used a higher dose in the pilot, and in the phase 2 they will use that same higher dose.
The lower dose was given to 5 patients recently - 4 long covid patient and one person from the pilot who had relapsed iirc.