Almost all of this is nonsense. Patients obviously did not report those 'themes', this is a managed discussion that focused on what the providers are doing, is generic nonsense, or simply reframes what patients say in a useless way. Entirely useless and deceitful.
https://www.me-foreldrene.no/referanser-brukt-av-oslo-chronic-fatigue-network-ocfn
It should be embarrasing, but obviously they don't see it that way. That list is laughable (and so was the rest of the presentation..)
I completely agree with Eirik here. We don’t need «balance», we need scientific rigour.
Yes. That HDIR says they will be rigorous and create guidelines based on "solid" evidence is contradicted by the "balance" part.
So, literally the dominant paradigm. While patients, who have been ostracized and discriminated for decades, are still largely unrepresented. That they actually frame going to the same people who have dominated the current destructive paradigm as "reaching out" to other relevant groups is just absurdly dishonest, and says everything about the whole project is corrupt, pure Kabuki theater.
Røysumtunet is a private hospice (not sure this would be the best term) where sever pwME can have accomodations such as dark and sound proof rooms and personel that know the condition. There are some controversies around them, but as for treatment they are not BPS inclined. FaFo and SINTEF are also not part of the BPS gang over here.
I think it might have been more of a reference to RN and OCFC being invited, when e.g. Fluge and Mella have not been invited, and they also turned down Søraas (context: leader of a large LC-research project).
Yup. There is not a single valid reason to invite the people pushing the failed paradigm. They had decades to prove themselves, and they proved that it's a complete disaster and that they have nothing whatsoever to contribute.
